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Research ethics boards need urgent training on Long COVID and myalgic encephalomyelitis
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t use validated measures for post-exertional malaise (PEM). But the Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation (PREFACER) study, run by researchers at Western University, stands out because it involves deceiving participants — undermining informed consent and potentially violating Canadian ethical research standards. Read more…
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