Commentary
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Work until you disappear: Long COVID ensnared me in an exploitative health system
The disease emphasizes the racism and ableism of the public health sector in Germany. People with disabilities and chronic illnesses must be prioritized over profits.
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We must free Long COVID and the people living with it from the mind-body trap
There is a recurring pattern in the history of medicine that still pops up from time to time. When our understanding of a disease lags far behind the need for explanations, biology becomes a matter of one’s own perception. This inevitably shifts the burden of proof back onto the people we should be helping; those…
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Research ethics boards need urgent training on Long COVID and myalgic encephalomyelitis
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t use validated measures for post-exertional malaise (PEM). But the Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation (PREFACER) study, run by researchers at Western…
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A toolkit for new advocates: What I learned from the Long COVID Moonshot campaign
While the multi-billion dollar Long COVID Moonshot bill is currently stalled, advocates learned many important lessons that the community must carry into future efforts.
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A test for Long COVID can’t leave anyone behind
A test for Long COVID will be transformative, and we should start preparing for its arrival now.
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We need masks in healthcare. Now.
As a person with Long COVID, losing consciousness was a terrifying experience made worse by a potential exposure risk. I quickly put my mask back on and thankfully managed to escape unscathed. But this experience reinforced how much power healthcare providers have over those in their care.
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I developed Long COVID while practicing medicine. The system had no place for me.
I was three hours into my internal medicine ward call when the brain fog descended like a curtain dropping mid-performance.
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Alice Wong showed us Disability Justice makes our advocacy stronger
With her #PodSaveJon campaign, she helped deliver one of the Long COVID movement’s best moments.
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I moved into a tiny home in the woods after getting Long COVID.
I’m writing at my kitchen counter in a 160-square-foot tiny house overlooking a stand of tall, regal pines laden with snow. The wood stove is going. A whiteboard is on the wall, listing daily chores like “chop wood” and “shovel driveway.” There’s also a quote from Dean Spade in red that says, “No one is…
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Marcia: Life with severe ME is like screaming into the void
Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
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