Commentary
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A test for Long COVID can’t leave anyone behind
A test for Long COVID will be transformative, and we should start preparing for its arrival now.
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We need masks in healthcare. Now.
As a person with Long COVID, losing consciousness was a terrifying experience made worse by a potential exposure risk. I quickly put my mask back on and thankfully managed to escape unscathed. But this experience reinforced how much power healthcare providers have over those in their care.
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I developed Long COVID while practicing medicine. The system had no place for me.
I was three hours into my internal medicine ward call when the brain fog descended like a curtain dropping mid-performance.
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Alice Wong showed us Disability Justice makes our advocacy stronger
With her #PodSaveJon campaign, she helped deliver one of the Long COVID movement’s best moments.
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I moved into a tiny home in the woods after getting Long COVID.
I’m writing at my kitchen counter in a 160-square-foot tiny house overlooking a stand of tall, regal pines laden with snow. The wood stove is going. A whiteboard is on the wall, listing daily chores like “chop wood” and “shovel driveway.” There’s also a quote from Dean Spade in red that says, “No one is…
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Marcia: Life with severe ME is like screaming into the void
Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
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A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide
Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject this narrative. We collaborated to create a treatment guide.
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My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.
I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…
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How to write an op-ed about Long COVID
Op-eds, sometimes known as opinion or commentary, have been powerful in raising awareness and providing solutions for Long COVID, from early reports of the disease to calls to action that have inspired legislation.
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“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.
The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.
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