International
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Biological pathways and mechanistic trials centered at new Long COVID conference in Amsterdam
Researchers, clinicians, and advocates gathered for the inaugural conference of the International Society for Long COVID and Post-Acute Infection Syndromes in the Netherlands in late August. The four-day event featured hundreds of presentations and posters about trials and disease mechanisms.
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Anil van der Zee receives Dutch royal distinction
The newly knighted ME advocate discusses his royal honor with David Tuller.
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“This exhaustion is cellular”: Excerpts from the new book ‘What Is Myalgic Encephalomyelitis Like?’
Essays focusing on Severe Myalgic Encephalomyelitis (ME), from a new book by an international group of writers documenting their ME experiences.
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Abandoned by our governments, people with severe ME and Long COVID are supported by severely ill peers
Mari, a Black Canadian woman with severe myalgic encephalomyelitis (ME), is supported by fellow people with ME in the absence of institutional care.
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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?
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Work until you disappear: Long COVID ensnared me in an exploitative health system
The disease emphasizes the racism and ableism of the public health sector in Germany. People with disabilities and chronic illnesses must be prioritized over profits.
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International ME/CFS Conference roundup: Setbacks and new hopes for therapeutic research
More than 50 experts from around the world presented the latest findings in basic and therapeutic research on myalgic encephalomyelitis (ME) and Long COVID at a conference in Berlin.
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Breaking the vicious cycle: How two German scientists seek to solve ME
A “unifying” hypothesis of the mechanisms, triggers, and risk factors for myalgic encephalomyelitis (ME), is gaining support. Further evaluation and development of a potential drug depend on funding.
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Thousands “lie in” for German ME protests
The demonstrations, organized by the group #LiegendDemo, took place in 42 cities across the country. Advocates demanded an end to “psychosomatic treatment of ME,” mandatory training for medical professionals, and large scale public health campaigns, and more. To mark International Myalgic Encephalomyelitis (ME) Awareness Day, advocates participated in marches and “lie in” protests in 42…
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Long COVID advocates demand biological research at a conference in Paris
We spoke with the two organizations behind the viral moment where advocates interrupted speakers at the Long COVID EU Project event.
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