International
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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?
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Work until you disappear: Long COVID ensnared me in an exploitative health system
The disease emphasizes the racism and ableism of the public health sector in Germany. People with disabilities and chronic illnesses must be prioritized over profits.
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International ME/CFS Conference roundup: Setbacks and new hopes for therapeutic research
More than 50 experts from around the world presented the latest findings in basic and therapeutic research on myalgic encephalomyelitis (ME) and Long COVID at a conference in Berlin.
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Breaking the vicious cycle: How two German scientists seek to solve ME
A “unifying” hypothesis of the mechanisms, triggers, and risk factors for myalgic encephalomyelitis (ME), is gaining support. Further evaluation and development of a potential drug depend on funding.
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Thousands “lie in” for German ME protests
The demonstrations, organized by the group #LiegendDemo, took place in 42 cities across the country. Advocates demanded an end to “psychosomatic treatment of ME,” mandatory training for medical professionals, and large scale public health campaigns, and more. To mark International Myalgic Encephalomyelitis (ME) Awareness Day, advocates participated in marches and “lie in” protests in 42…
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Long COVID advocates demand biological research at a conference in Paris
We spoke with the two organizations behind the viral moment where advocates interrupted speakers at the Long COVID EU Project event.
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“People are dying because of the stigma”: Long COVID’s global underreporting problem
Hosts Miles Griffis and Betsy Ladyzhets speak with health journalist Jamie Ducharme about why Long COVID is dramatically underreported globally, and hear from South African advocate Mlindeni Gabela about fighting for diagnosis and breaking stigma in his community.
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I developed Long COVID while practicing medicine. The system had no place for me.
I was three hours into my internal medicine ward call when the brain fog descended like a curtain dropping mid-performance.
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Long COVID is significantly underreported across the globe
Long COVID, which has affected more than 400 million people around the world, is often underreported, particularly in low- and middle-income countries (LMICs).
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Austin recognizes Long COVID Awareness Day, events happen around the world
Around the world, people with Long COVID recognized International Long COVID Awareness Day with events, demonstrations, and buildings lit up in teal. Austin, Texas, is the latest city to recognize the day, through a proclamation from the Austin city council — a major step in the state.
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