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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom? Read more…
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Policy & Advocacy
Science
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New CDC data identify more than 5,000 Long Covid deaths, but tally is likely a significant undercount
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What’s happening this week, January 9
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Q&A: Eric Topol on Long Covid clinical trials, RECOVER funding, what he’s looking forward to in 2024
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What’s happening this week, January 2
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Q&A: Ziyad Al-Aly on why Long Covid has a higher burden than “Long Flu,” future research, and more
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What’s happening this week, December 12
Covid-19
Health
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Invivyd Chairman Marc Elia: The bureaucracy is killing people with Long COVID
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My husband and I have both had ME for decades, then our son got Long COVID
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“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review
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As someone with Long COVID, I’m terrified of what could happen to the Affordable Care Act