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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom? Read more…
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Policy & Advocacy
Science
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Q&A: Dr. Ian Simon on his plans for the HHS Office of Long Covid Research and Practice
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Research updates, February 27
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PolyBio announces $15 million in Long Covid research funding, new projects studying viral persistence
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Long Covid surveys from a FDA/NIH initiative ask which drugs help alleviate symptoms
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Research updates, February 20
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Covid-19 reinfections are further disabling people with Long Covid
Covid-19
Health
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Avoiding caregiver burnout: Wisdom for the ME and Long COVID community
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How volunteering to become a lab rat paid off
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COVID-19 triggered a life-threatening pulmonary embolism that led to long-term lung damage. It took two ER trips before doctors believed me.
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Letter to the editors: The University of Washington’s Long COVID clinic