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NIH officials discuss agency’s Long COVID clinical trials, respond to critiques
“We understand the frustration and respect it completely,” said NIAID program officer and TLC leader Joseph Breen, when asked about the more than a year that’s gone between RECOVER-TLC trials’ announcement and enrolling participants. Read more…
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Policy & Advocacy
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Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases.
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Federal workers with Long COVID face firings, loss of accommodations, and more challenges under Trump
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Trump commands HHS to terminate advisory committee on Long COVID
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Now offline: Government resources about Long COVID as a disability
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Breaking: Vital Long COVID data taken down following Trump order
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RECOVER hasn’t been impacted by Trump freezes so far, sources say. But the program’s future is still uncertain.
Science
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Research updates, February 10
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Long COVID affects millions of children. The largest pediatric trial so far launches this year.
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Research updates, February 3
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Research updates, January 27
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New RECOVER-TLC trials won’t enroll until summer. Nearly two years after the program’s launch.
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Research updates, January 20
Covid-19
Health
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Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning”
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Priced out: Some Long COVID and ME specialists charge high prices for concierge care
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UNC shuts down Long COVID clinic, leaving thousands without specialized care
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The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.
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Long COVID is increasing housing insecurity, but support programs fail to help
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Churches are ignoring the Long COVID crisis. Some say it’s at odds with Christian values.
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I want a Long COVID language revolution — not language imposed onto my sick, disabled body
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Avoiding caregiver burnout: Wisdom for the ME and Long COVID community
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How volunteering to become a lab rat paid off
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COVID-19 triggered a life-threatening pulmonary embolism that led to long-term lung damage. It took two ER trips before doctors believed me.