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NIH officials discuss agency’s Long COVID clinical trials, respond to critiques
“We understand the frustration and respect it completely,” said NIAID program officer and TLC leader Joseph Breen, when asked about the more than a year that’s gone between RECOVER-TLC trials’ announcement and enrolling participants. Read more…
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Policy & Advocacy
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#MEAction launches campaign to educate healthcare providers about Myalgic Encephalomyelitis
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Sen. Bernie Sanders seeks feedback on $10 billion “moonshot” for Long Covid
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Photo essay: Long Covid advocates gather in DC for demonstration
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Sen. Bernie Sanders introduces resolution to formalize Long Covid Awareness Day
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How mask blocs are keeping communities safe with neglected government stockpiles
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It’s “all hands on deck” for Long Covid Awareness Day as the CDC ignores Long Covid in new guidance
Science
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Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you.
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Research updates, September 23
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Research updates, September 16
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Stop looking for a silver bullet. Start mixing the Long COVID cocktail.
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RECOVER-TLC announces new Long COVID clinical trials, receives mixed reactions from patient community
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Live blog: RECOVER-TLC workshop on new Long COVID clinical trials
Covid-19
Health
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With no approved treatments and little support, people with Long COVID turn to online drug markets
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We talked to a veteran lawyer about applying for disability insurance with Long COVID and ME
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The trouble with recovery stories
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Solange Knowles thanks chronic illness community, shares POTS, MCAS, and Sjögren’s diagnoses
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New Long COVID and complex disease center at Mount Sinai set to be a leader in research, clinical care
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Filmmaker Jesse Ridgway shares experience with Long COVID with millions of followers
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Letter to the editors: The University of Washington’s Long COVID clinic
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Missives from the dismissed: Still COVIDing without community
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A timely book of poetry chronicles a mother — and her daughters’ — experience with Long COVID
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An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases