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  • What is the federal government currently doing about Long COVID?

    What is the federal government currently doing about Long COVID?

    Melanie Marich

    In this episode of Still Here, hosts Betsy Ladyzhets and Miles Griffis talk about the latest updates from the US Department of Health and Human Services and their efforts on Long COVID, as well as the criticisms they face from members of the community. Subscribe to Still Here wherever you get your podcasts, and leave us a review, telling us what you think of this episode. Read more…

Recent articles

  • U.S. scientists sequence 1,000 genomes from measles, a disease long eliminated with vaccines
    Health, Science
    Amy Maxmen

    U.S. scientists sequence 1,000 genomes from measles, a disease long eliminated with vaccines

  • “Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises
    Policy & Advocacy
    Betsy Ladyzhets

    “Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises

  • National COVID-19 trends, March 31
    COVID-19
    Betsy Ladyzhets

    National COVID-19 trends, March 31

Get the latest Long COVID news and commentary

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Policy & Advocacy

  • A group of advocates standing in front of Los Angeles City Hall, an imposing white building with palm trees out front. Everyone in the group is wearing high-quality masks, and advocates toward the front hold a banner with the words, "Lie Down 4 Long Covid."
    June 2, 2025

    Los Angeles’ $13M COVID-19 relief funds could go to building upgrades, not Long COVID care

  • Collage graphic showing cut-outs of people wearing KN95 masks
    May 27, 2025

    Illinois could become the first state in the country to ban mask bans. Here’s how we created the bill to do it.

  • Secretary Robert F. Kennedy Jr., pictured at the Senate during a hearing on May 14
    May 14, 2025

    Secretary Kennedy promises to support Long COVID treatment research in Senate hearing, says son is “dramatically affected”

  • May 12, 2025

    “Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support

  • Collage graphic showing a group of ME advocates at an awareness demonstration, the Minnesota state capitol building, a portrait of house speaker Lisa Demuth, and a vial of blood, overlaid with boxes in pastel blue, green, purple, and pink.
    May 7, 2025

    Minnesota House budget proposes eliminating state Long COVID program

  • A graphic titled: "Long COVID Mode, Real-world Long COVID symptoms translated into in-game effects." Below the text, a video game character is shown hunched over, as though struggling to manage a symptom. Energy bars above his head indicate that he is facing reduced vitality, cognitive dysfunction, and reduced stamina. At the bottom of the image, the graphic shows that this mode was created for Elden Ring, The Witcher, and Minecraft, through collaboration with Long COVID Europe.
    May 6, 2025

    “Long COVID Mode”: Seeing the crisis through games

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Science

  • A close up artwork of the American $100 bill featuring Benjamin Franklin. The former president, a white man in his 50s or 60s appears green with lines across his face and stares at the viewer.
    November 25, 2025

    Research updates, November 25

  • Artistic depiction of ME symptoms by a woman who has the disease, showing a woman slumped over with exhaustion in a river of blue and orange
    November 21, 2025

    Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise

  • November 18, 2025

    Research updates, November 18

  • November 14, 2025

    Live blog: PolyBio’s Fall 2025 Symposium shares Long COVID and related disease research updates

  • A microscopic image shows a microclot, or tiny blood clot, that apparently originated from the combination of two microclots resulting from NETs association. The photo labels different parts of the microclot, which appears red, blue, green, and yellow.
    November 11, 2025

    Research updates, November 11

  • View of the Berlin Victory Column from a Park, Berlin, Germany. The tower glows in late day light between dark fall foliage.
    November 4, 2025

    Research updates, November 4

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Covid-19

  • Multiple line charts show emergency department visits for so-called "respiratory" illnesses in New York City in recent months. The largest chart, in the top and center, shows all visits for these diagnoses with an orange line; visits hovered around 6-6.5% for much of the summer, then rose over 8% in late September, and are going down slightly in the most recent data. Below this one, three other, smaller charts show COVID-19 visits (in blue), flu visits (in purple), and RSV visits (in green). COVID-19 visits have recently declined following an increase in the summer. Flu and RSV visits are both much lower, near 0%. Text at the top of the image reads: "These data show trends of people who received a respiratory illness diagnosis in an NYC emergency department and do not represent everyone with respiratory illness. For example, people who received care outside of an emergency department or who never sought care for their illness are not included."
    October 21, 2025

    National COVID-19 trends, October 21

  • Line chart from WastewaterSCAN showing the average SARS-CoV-2 levels for all sites in their wastewater surveillance network. The Y axis represents quantity of nucleic acids, PMMoV normalized (x1 million), and the X axis represents time, spanning July 2024 to October 2025. The chart shows a COVID-19 wave in summer 2024, one in winter 2024-25, and one in summer-early fall 2025. Levels have significantly declined from early September through early October 2025, and the latest levels are close to the lows reported in May-June of this year.
    October 14, 2025

    National COVID-19 trends, October 14

  • Line chart from Yale's PopHIVE dashboard titled, "Trends in COVID-19 activity in United States." The chart includes seven lines representing different sources of COVID-19 activity data: black for CDC NHSN, dotted black for CDC NSSP, purple for CDC NWSS, dotted pink for CDC RespNET, red for Delphi Doctor Claims, dotted red/orange for Delphi Hospital Claims, orange for Epic Cosmos ED. The Y axis represents scaled COVID-19 activity (with all data sources adjusted to fit on the same axis), and the X axis represents time, going from October 2023 to September 2025. All data sources show COVID-19 waves in winter 2023-24, summer 2024, winter 2024-25, and summer-early fall 2025. The CDC data sources are not available after September 20, 2025, but more recent data from Delphi indicate that COVID-19 levels have continued to decline through late September.
    October 7, 2025

    National COVID-19 trends, October 7

  • September 30, 2025

    National COVID-19 trends, September 30

  • This livestream screenshot shows Violet Affleck speaking at the UN. A placard in front of her reads, "Youth advocate." She's wearing an N95 mask.
    September 23, 2025

    Violet Affleck advocates for children with Long COVID, masks, and clean indoor air at United Nations event

  • September 23, 2025

    National COVID-19 trends, September 23

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Health

  • A black and white photo shows a close of up of a person's arm as they put on a nicotine patch. Doodles in bright yellow laid of over the image read "Nicotine" and display the chemical signature of nicotine with one of the hexagons of the molecule over the patch.
    October 17, 2025

    Nicotine patches help relieve symptoms in some people with Long COVID. Can the science behind it lead to future therapies?

  • October 14, 2025

    Despite the ongoing pandemic, some companies are banning employees from masking

  • Graphic with a zebra-print background, representing EDS awareness. At the center of the image, there is a plus icon for healthcare offset with cartoon representations of the virus SARS-CoV-2.
    October 7, 2025

    Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier.

  • Photo of an art piece: a white object, shaped like an egg, with painted representations of the virus SARS-CoV-2 across its surface
    September 26, 2025

    Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you.

  • This livestream screenshot shows Violet Affleck speaking at the UN. A placard in front of her reads, "Youth advocate." She's wearing an N95 mask.
    September 23, 2025

    Violet Affleck advocates for children with Long COVID, masks, and clean indoor air at United Nations event

  • A portrait photo of Caitlin Rivers, against a colorful background showing pieces of charts and trendlines
    September 18, 2025

    Epidemiologist Caitlin Rivers shares advice for interpreting COVID-19 and other infectious disease data

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Commentary

  • The image is a selfie of Marcia Doherty, a woman who sits in a medical bed in a medical facility. She wears a blue and white striped hat, stylish tan glasses, an white N95 mask, and a white and black t-shirt.
    March 20, 2026

    Marcia: Life with severe ME is like screaming into the void

  • Graphic highlighting the cover of the PLRC-RTHM Long COVID Treatment Guide, featuring both organizations' logos and text sharing the guide's title. Behind the cover, there is a zoomed-in image of a blister pack holding pills.
    March 12, 2026

    A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide

  • A person is standing looking down, they appear sad. They have brown hair, and are wearing a brown sweater. They are leaning on a fence and appear to be on a bridge walkway. There is a group of people in the distance. In the background is a sunset with orange, yellow, and blue colors that is set over dark blue water, with a green hillside lining the waterway.
    March 7, 2026

    My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.

  • A flier for the event reads, "The Sick Times: Free Webinar, The Long COVID Op-Ed." It features photos, names, and affiliations for the event's three guest speakers: Torie Bosch, First Opinion editor at STAT; Madeline Miller, best-selling author; Funmi Okunola, MD, co-founder of Long COVID the Answers. There is a stack of newspapers in the background of the flyer, on top of a teal background.
    February 24, 2026

    How to write an op-ed about Long COVID

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The Sick Times is an independent news site founded by journalists Betsy Ladyzhets and Miles Griffis. We report on the Long COVID crisis, COVID-19, and infection-associated illnesses.

Contact:
editors@thesicktimes.org

PO Box 331009
Brooklyn, NY 11233

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