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  • What is the federal government currently doing about Long COVID?

    What is the federal government currently doing about Long COVID?

    Melanie Marich

    In this episode of Still Here, hosts Betsy Ladyzhets and Miles Griffis talk about the latest updates from the US Department of Health and Human Services and their efforts on Long COVID, as well as the criticisms they face from members of the community. Subscribe to Still Here wherever you get your podcasts, and leave us a review, telling us what you think of this episode. Read more…

Recent articles

  • U.S. scientists sequence 1,000 genomes from measles, a disease long eliminated with vaccines
    Health, Science
    Amy Maxmen

    U.S. scientists sequence 1,000 genomes from measles, a disease long eliminated with vaccines

  • “Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises
    Policy & Advocacy
    Betsy Ladyzhets

    “Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises

  • National COVID-19 trends, March 31
    COVID-19
    Betsy Ladyzhets

    National COVID-19 trends, March 31

Get the latest Long COVID news and commentary

Sign up for our free newsletter, delivered every Tuesday! Receive our latest stories, research updates, COVID-19 trends, and more.

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Trending

“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promisesBetsy Ladyzhets
California clinicians gather for Long COVID forum. Recent guides offer direction.California clinicians gather for Long COVID forum. Recent guides offer direction.Miles W. Griffis
A new aid in the doctor’s office: Introducing the Long COVID Treatment GuideA new aid in the doctor’s office: Introducing the Long COVID Treatment Guidesick times
#MEAction co-founder Beth Mazur passes away#MEAction co-founder Beth Mazur passes awayMiles W. Griffis
Research updates, March 31Research updates, March 31Miles W. Griffis

Policy & Advocacy

  • A group of people are pictured lying down in a public square, with a sign in the center of the demonstration reading, "5 years of Long COVID, half a decade of neglect. It's time to make it visible." Some members of the group are also holding signs drawing attention to Long COVID, and many are wearing high-quality masks.
    March 15, 2025

    Live blog: International demonstrations ignite for Long COVID Awareness Day

  • A disease awareness ribbon in the colors teal and gray sits on top of a watercolor map of the world.
    March 14, 2025

    Our community came together to start International Long COVID Awareness Day in 2023. Here’s how you can get involved this year.

  • Photo of Rory Preston with a black and white filter, in front of a blue background with white strings of code and a design evoking biochemistry diagrams
    March 11, 2025

    Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases.

  • View of a federal building, with a black and white filter and other adjustments to create a harsh tone. The image has also been cut to evoke severe job cuts across the federal government.
    March 3, 2025

    Federal workers with Long COVID face firings, loss of accommodations, and more challenges under Trump

  • February 21, 2025

    Trump commands HHS to terminate advisory committee on Long COVID 

  • A photo of the U.S. Department of Labor Frances Perkins building, in Washington D.C.
    February 11, 2025

    Now offline: Government resources about Long COVID as a disability

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Science

  • Graphic with a zebra-print background, representing EDS awareness. At the center of the image, there is a plus icon for healthcare offset with cartoon representations of the virus SARS-CoV-2.
    October 7, 2025

    Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier.

  • A close up profile of a child wearing a teal KN94 respirator
    October 7, 2025

    Research updates, October 7

  • A scientific drawing shows a blood clot, with red blood cells trapped in a white fibrin mesh.
    September 30, 2025

    Research updates, September 30

  • Photo of an art piece: a white object, shaped like an egg, with painted representations of the virus SARS-CoV-2 across its surface
    September 26, 2025

    Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you.

  • Five sheets of Paxlovid pills in an array, with a filter on the image making the sheets appear wobbly
    September 23, 2025

    Research updates, September 23

  • An image of the globe from space, showing the northern portion of South America, Central America, and southern North America
    September 16, 2025

    Research updates, September 16

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Covid-19

  • Map of the U.S. by state, with states color-coded according to their recent COVID-19 trends. 28 states are colored in dark red for "growing" and 13 are in bright orange for "likely growing." 8 are in gray for "not changing" and two are in yellow for "not estimated." The map is titled, "COVID-19 trends by state, July 29." Data are sourced from the CDC's Center for Forecasting and Outbreak Analytics.
    August 5, 2025

    National COVID-19 trends, August 5

  • Line chart titled, "Regional SARS-CoV-2 Wastewater Concentrations." The chart includes lines representing the four main U.S. regions: purple for Midwest, pink for South, yellow for Northeast, green for West. The X axis represents time, going from March 2024 to July 2025, and the Y axis represents SARS-CoV-2 concentration, copies per mL. All four regions experienced COVID-19 waves in summer 2024 and winter 2024-25, though magnitude differed somewhat (with lower spread in the winter in the West and South compared to the Midwest and Northeast). In the most recent data, all four regions are reporting increases, with the highest levels in the West.
    July 29, 2025

    National COVID-19 trends, July 29

  • Line chart showing COVID-19 test positivity between summer 2023 and 2025. The chart is titled, "COVID-19 Nucleic Acid Amplification Test (NAAT) Percent Positivity, by Week, in The United States, Reported to CDC." The X axis represents time, from May 2023 to July 2025, and the Y axis represents weekly % test positivity for COVID-19 tests reported in a CDC lab network. The chart shows COVID-19 waves in summer 2023, winter 2023-24, summer 2024, and winter 2024-25. The most recent data shows a significant increase between June 28 and July 12, 2025, though the line is dashed to indicate that recent data are preliminary and subject to change.
    July 22, 2025

    National COVID-19 trends, July 22

  • Map of the U.S. by state, with states colored according to their wastewater viral activity levels for SARS-CoV-2. The chart is titled, "COVID-19 wastewater viral activity levels, July 5," and additional text below the title reads: "Wastewater viral activity levels of SARS-CoV-2 for U.S. states, for the week between June 29 and July 5, 2025. Note that the CDC's activity levels are based on already-high baselines." Four states are colored in dark red for "high" levels: Florida, Alabama, Alaska, Hawaii. Five states are colored in orange for "moderate" levels: California, Nevada, Colorado, Louisiana, South Carolina. Most other states are colored in yellow for "low" levels or light green for "very low" levels. North Dakota is colored in gray for "no data."
    July 15, 2025

    National COVID-19 trends, July 15

  • alt text: Map of the U.S., with states color-coded according to whether COVID-19 cases are growing or declining based on CDC forecasts. Text above the map reads: "As of July 1, 2025, we estimate that COVID-19 infections are growing or likely growing in 18 states, declining or likely declining in 3 states, and not changing in 23 states." States with "growing" infections, colored in dark purple, are Texas, Oklahoma, Mississippi, and Alaska. 14 other states across the South and West regions have "likely growing" infections, colored in lighter purple. States with "declining or likely declining" infections are colored in green, and the rest of the map is gray for "not changing" or white for "not estimated."
    July 8, 2025

    National COVID-19 trends, July 8

  • Bar chart titled, "Published Sequences from NS3, CDC Sequencing Contracts, and Other CDC Sequencing Efforts: Weekly Published Sequences." The X axis represents time, from January 2021 to May 2025, while the Y axis represents SARS-CoV-2 sequences published each week. The number of sequences published increased and decreased along with COVID-19 spread from 2021 through 2023 but generally stated over 10,000 per week, peaking near 100,000 in early 2022. Since mid-2023, the number of sequences published has declined dramatically, typically staying under 2,000 a week in 2025. The bars are color-coded, with dark blue representing sequences published by the CDC itself and light blue representing sequences published by public health laboratories (PHLs) and partners.
    July 1, 2025

    National COVID-19 trends, July 1

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Health

  • Collage graphic showing a physician with a white coat and stethoscope in the center, a pile of dollar bills at one corner, a health insurance claim form, and a cartoon-ish drawing of the SARS-CoV-2 virus. A red arrow cuts through the center, and matches the bright red background of the graphic.
    July 1, 2025

    Priced out: Some Long COVID and ME specialists charge high prices for concierge care

  • An image of hospitals and clinical teaching facilities at the University of North Carolina School of Medicine, with a sepia-toned filter. On top of the image, there's a cartoonish, red drawing of a face showing distress, with X's for eyes and a tongue sticking out.
    June 24, 2025

    UNC shuts down Long COVID clinic, leaving thousands without specialized care

  • A portrait of Health Secretary Robert F. Kennedy Jr., colored in red, with a graphical representation of the SARS-CoV-2 virus behind him.
    June 19, 2025

    The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.

  • A person sits cross-legged on a city sidewalk, huddled in a winter coat. They hold a cardboard sign that reads: "COVID sucks, hard and lonely times, thank you." There is a white bucket sitting in front of them, reading: "Anything helps, thank you, God bless."
    June 17, 2025

    Long COVID is increasing housing insecurity, but support programs fail to help

  • Graphic showing a stained glass window, with light streaming through in shades of red, orange, pink, brown, blue, and other colors. There is a red shape of a cross at the center of the window.
    June 6, 2025

    Churches are ignoring the Long COVID crisis. Some say it’s at odds with Christian values.

  • A group of advocates standing in front of Los Angeles City Hall, an imposing white building with palm trees out front. Everyone in the group is wearing high-quality masks, and advocates toward the front hold a banner with the words, "Lie Down 4 Long Covid."
    June 2, 2025

    Los Angeles’ $13M COVID-19 relief funds could go to building upgrades, not Long COVID care

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Commentary

  • August 27, 2024

    Even as a former executive assistant, managing care for Long COVID is a full-time job

  • A busy street in South Africa, with people walking and riding bikes near a supermarket
    August 1, 2024

    In South Africa, Long Covid is an afterthought to Tuberculosis

  • July 23, 2024

    This is what it feels like: Artist visualizes Long COVID symptoms

  • A parent cares for a sick child.
    July 16, 2024

    My daughter has Long Covid. It transformed me into an advocate for Long Covid kids.

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The Sick Times is an independent news site founded by journalists Betsy Ladyzhets and Miles Griffis. We report on the Long COVID crisis, COVID-19, and infection-associated illnesses.

Contact:
editors@thesicktimes.org

PO Box 331009
Brooklyn, NY 11233

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