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I moved into a tiny home in the woods after getting Long COVID.
I’m writing at my kitchen counter in a 160-square-foot tiny house overlooking a stand of tall, regal pines laden with snow. The wood stove is going. A whiteboard is on the wall, listing daily chores like “chop wood” and “shovel driveway.” There’s also a quote from Dean Spade in red that says, “No one is coming to save us.” Read more…
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Policy & Advocacy
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How America lost control of the bird flu, setting the stage for another pandemic
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Dr. Gemma Carey, Australian public health scholar and Long COVID advocate, dies at 43
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California Governor Gavin Newsom declares state of emergency for bird flu
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“Don’t give up hope”: Long COVID advocates and researchers say crucial work will continue under Trump
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Advocacy groups suspend ties with U.K. charity The ME Association over chairman’s op-ed
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We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride
Science
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Despite waning headlines, bird flu is still a threat. Here’s how you can help farmworkers.
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The crisis is “exasperating”: Long COVID compounds economic hardship in Argentina
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“The field is coming of age”: Long COVID researchers gather in Santa Fe to foster collaboration
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Research updates, August 19
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No “easy home runs”: Early Long COVID trials of Paxlovid and monoclonal antibodies failed, but the treatments still have potential
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Research updates, August 12
Covid-19
Health
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What we know about the U.S. bird flu outbreak and its chronic disease risk
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“There is no money to survive”: Long COVID pushes India’s marginalized workers deeper into poverty
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A lack of provider literacy is straining people with Long COVID. Training programs for doctors could help.
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Trump commands HHS to terminate advisory committee on Long COVID
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Without clear clinical guidelines in México, people with Long COVID face gaslighting and erasure
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Now offline: Government resources about Long COVID as a disability
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You know someone with Long COVID. They need you to ask about it genuinely.
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We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet.
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Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.
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Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved.