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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom? Read more…
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Policy & Advocacy
Science
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“It’s like torture”: The tilt table test could be risky for many people with Long COVID
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Research updates, April 8
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Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC
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What we know about the U.S. bird flu outbreak and its chronic disease risk
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Research updates, April 1
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UPDATE: RECOVER Long COVID pathobiology grants restored
Covid-19
Health
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#MEAction launches campaign to educate healthcare providers about Myalgic Encephalomyelitis
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Bird flu is spreading through U.S. farms. What are the risks to people?
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‘People need help now’—Why NYC’s unique Long Covid programs aren’t enough
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Hidden disability: The quiet struggle with Long Covid in Kenya
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Want to enroll in a Long Covid clinical trial? This new project helps track them.
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Covid-19 reinfections are further disabling people with Long Covid
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Invivyd Chairman Marc Elia: The bureaucracy is killing people with Long COVID
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My husband and I have both had ME for decades, then our son got Long COVID
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“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review
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As someone with Long COVID, I’m terrified of what could happen to the Affordable Care Act