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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom? Read more…
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Policy & Advocacy
Science
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“It’s like torture”: The tilt table test could be risky for many people with Long COVID
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Research updates, April 8
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Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC
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What we know about the U.S. bird flu outbreak and its chronic disease risk
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Research updates, April 1
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UPDATE: RECOVER Long COVID pathobiology grants restored
Covid-19
Health
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#MEAction launches campaign to educate healthcare providers about Myalgic Encephalomyelitis
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Bird flu is spreading through U.S. farms. What are the risks to people?
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Hidden disability: The quiet struggle with Long Covid in Kenya
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Want to enroll in a Long Covid clinical trial? This new project helps track them.
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Covid-19 reinfections are further disabling people with Long Covid
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How do you get people to care about COVID-19? Here’s what I’ve learned as an organizer.
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Long COVID taught me to slow down and stop trying to meet able-bodied benchmarks
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Posthumous album of singer Kara Jane released on Severe ME Awareness Day
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As a linguist, I want to find the words to measure chronic illness