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We made a COVID-19 memorial in the ashes of a Joshua tree forest
Despite nearly 1.3 million deaths and counting, there is still not a national memorial for the pandemic. Our informal memorial in the middle of the Mojave Desert is one small way to remember those we’ve lost so far. Read more…
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Policy & Advocacy
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HHS hosts event and announces new initiatives for Lyme disease, but advocates are skeptical about follow-through
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43
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The future of Medicaid is “really scary” for people with Long COVID
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“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague
Science
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Research updates, June 9
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Research updates, June 2
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PolyBio’s Spring 2026 symposium: Advancing Long COVID biomarkers and treatments
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International ME/CFS Conference roundup: Setbacks and new hopes for therapeutic research
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Research updates, May 26
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Mold exposure can trigger and worsen chronic illness. Climate change will increase the risk.
Covid-19
Health
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A “muddy intervention”: The complex reality of taVNS therapy for Long COVID
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Long COVID is significantly underreported across the globe
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U.S. scientists sequence 1,000 genomes from measles, a disease long eliminated with vaccines
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California clinicians gather for Long COVID forum. Recent guides offer direction.
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“It felt like a life-or-death choice”: Pregnancy with Long COVID has many unknowns
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A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide
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Between two crises: Living with Post-COVID Vaccine Syndrome in a Long COVID world
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Video essay: How does Long COVID affect queer and trans communities?
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Universities get an F on Long COVID. Here’s how they can support their students and reduce COVID-19 cases.
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Even stones break in this heat: Experiencing Long COVID in Indonesia