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“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.
The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention. Read more…
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Policy & Advocacy
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What’s happening this week, January 2
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Long Covid advocates send “unhappy holiday” cards to their representatives
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#MEAction co-founder Beth Mazur passes away
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Policy experts, scientists, disability groups urge Biden to address the Long Covid crisis
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HHS gave million-dollar grants to nine Long Covid clinics; here’s how they plan to use the funding
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HIV may increase the risk of Long Covid. Why aren’t major advocacy groups addressing it?
Science
Covid-19
Health
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New Long Covid and ME apps aim to share information, build community
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#MEAction launches campaign to educate healthcare providers about Myalgic Encephalomyelitis
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Bird flu is spreading through U.S. farms. What are the risks to people?
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‘People need help now’—Why NYC’s unique Long Covid programs aren’t enough
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Hidden disability: The quiet struggle with Long Covid in Kenya
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Want to enroll in a Long Covid clinical trial? This new project helps track them.
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“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review
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As someone with Long COVID, I’m terrified of what could happen to the Affordable Care Act
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Instead of supporting people with Long COVID, our government funds a genocide
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Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels