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“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises
New website receives mixed reviews from Long COVID advocates and researchers; some do not expect to see any meaningful support from the Trump administration. Read more…
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Policy & Advocacy
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Live blog: International demonstrations ignite for Long COVID Awareness Day
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Our community came together to start International Long COVID Awareness Day in 2023. Here’s how you can get involved this year.
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Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases.
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Federal workers with Long COVID face firings, loss of accommodations, and more challenges under Trump
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Trump commands HHS to terminate advisory committee on Long COVID
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Now offline: Government resources about Long COVID as a disability
Science
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Research updates, October 7
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Research updates, September 30
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Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you.
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Research updates, September 23
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Research updates, September 16
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Stop looking for a silver bullet. Start mixing the Long COVID cocktail.
Covid-19
Health
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UNC shuts down Long COVID clinic, leaving thousands without specialized care
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The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.
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Long COVID is increasing housing insecurity, but support programs fail to help
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Churches are ignoring the Long COVID crisis. Some say it’s at odds with Christian values.
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Los Angeles’ $13M COVID-19 relief funds could go to building upgrades, not Long COVID care
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Emergency departments aren’t trained for Long COVID — and patients are paying the price
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“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review
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As someone with Long COVID, I’m terrified of what could happen to the Affordable Care Act
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Instead of supporting people with Long COVID, our government funds a genocide
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Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels