sick times
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Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FDA) for the autoimmune disease myasthenia gravis. Without warning, the trial was canceled in June 2024.
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Letter to the editors: Concerns about California’s right-to-mask bill
In May, The Sick Times published an op-ed about a novel bill in Illinois that would enshrine the right to wear medical masks into that state’s law. The op-ed’s author, a writer and advocate who was part of the coalition behind the bill, wrote that advocates in several other states had worked on similar legislation.…
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Kennedy’s HHS commits to Long COVID, but without clear funding
Following two roundtable discussions with leading researchers and government officials — but limited patient engagement — HHS announced a public awareness campaign and medical resource platform
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Live blog: RECOVER-TLC workshop on new Long COVID clinical trials
Researchers and advocates meet near the National Institutes of Health (NIH) campus this week in Bethesda, Maryland for the second RECOVER-Treating Long COVID (TLC) workshop. The two-day event will offer updates on the NIH’s larger $1.8-billion Long COVID research program, called RECOVER, and announce a new set of clinical trials for the disease.
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“The field is coming of age”: Long COVID researchers gather in Santa Fe to foster collaboration
Last week, leading Long COVID and infection-association chronic condition (IACC) researchers met in Santa Fe, New Mexico, for the field’s second Keystone Symposia meeting. They were joined by advocates, clinicians, and representatives from pharmaceutical companies for a three-day conference focused on sharing new research and building consensus.
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Virtual town hall recording, July 2025
On July 24, The Sick Times hosted a virtual town hall. Co-founders and editors Miles Griffis and Betsy Ladyzhets shared updates about our editorial plans and finances and took questions from readers. The event is part of our summer 2025 fundraiser, which will continue through next week. Thank you to everyone who attended, we appreciated…
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Live blog: Following the Patient-Led Research Fund summer 2025 webinar
Members of the Patient-Led Research Collaborative (PLRC) and grantees of their $5 million Patient-Led Research Fund will be presenting updates about their work in a webinar today. The virtual event will feature talks sharing new findings about the underlying biology of infection-associated chronic conditions (IACCs), as well as discussions about how patient engagement leads to…
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Summer fundraiser: Help keep our essential work going into 2026
The Sick Times needs our readers’ help to keep our essential work going into 2026. This July, we’re aiming to raise $30,000 from our readers. We’re also aiming to have 100 readers set up new monthly donations.
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Live blog: Following the Spring 2025 PolyBio Symposium on Long COVID and related diseases
Leading scientists studying Long COVID and related chronic diseases are set to present updates to their work on Friday at the PolyBio Research Foundation’s Spring Symposium. The Sick Times’ team will be following the presentations throughout the day.
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Secretary Kennedy promises to support Long COVID treatment research in Senate hearing, says son is “dramatically affected”
Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill Cassidy (R-L.A.), who chairs the HELP Committee, asked about federal health agencies’ commitment to addressing Long COVID in his first question to the Secretary.
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