ME/CFS
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“It felt like a life-or-death choice”: Pregnancy with Long COVID has many unknowns
Little is known so far about how people with Long COVID experience pregnancy, but some insights can be gleaned from myalgic encephalomyelitis (ME) as well as several ongoing studies in this area.
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Marcia: Life with severe ME is like screaming into the void
Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
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Research updates, February 24
SARS-C0V-2 reinfections significantly increase the risk of Long COVID in children, a new National Institutes of Health (NIH) RECOVER study found.
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Research updates, February 10
A large study recently connected “chronic absenteeism” to pediatric Long COVID, further disproving the “immunity debt” talking points from pundits earlier in the pandemic.
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Metrodora promised comprehensive treatment. But within two years, it abruptly closed.
The clinic sought to cure “neuroimmune disorders” like Long COVID and myalgic encephalomyelitis. Former patients feel betrayed.
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Research updates, December 23
Two recent studies state that Long COVID is an occupational disease.
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Telehealth is vital for people with Long COVID. Don’t let it disappear.
Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis
This fall, an international group of people known as Team Nevra has led an ongoing campaign to fundraise and help find care for Nevra Elis, an advocate living with severe myalgic encephalomyelitis (ME).
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Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to their trial registration, while a handful excluded participants who experience it.
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Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
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What is the federal government currently doing about Long COVID?
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U.S. scientists sequence 1,000 genomes from measles, a disease long eliminated with vaccines
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“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises
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National COVID-19 trends, March 31
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Research updates, March 31
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