ME
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“This exhaustion is cellular”: Excerpts from the new book ‘What Is Myalgic Encephalomyelitis Like?’
Essays focusing on Severe Myalgic Encephalomyelitis (ME), from a new book by an international group of writers documenting their ME experiences.
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Research updates, August 4
A new study in Nature Communications confirmed skeletal muscle abnormalities in Long COVID and ME. The study, which furthered past research on post-exertional malaise from the same research group, compared various exercise tests and biopsies of people with Long COVID and ME to results from people who underwent 60 days of strict bedrest, as well…
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Dysautonomia conference centers biomarkers and post-exertional malaise
The 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.
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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?
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Every social justice movement is impacted by the Long COVID crisis
Long COVID disrupts struggles for justice, as activists and organizers with the disease are forced to suspend or change their tactics, facing a community that largely ignores COVID precautions.
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PolyBio’s Spring 2026 symposium: Advancing Long COVID biomarkers and treatments
The PolyBio Research Foundation recently announced new initiatives and centered biomarkers during their latest virtual conference.
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International ME/CFS Conference roundup: Setbacks and new hopes for therapeutic research
More than 50 experts from around the world presented the latest findings in basic and therapeutic research on myalgic encephalomyelitis (ME) and Long COVID at a conference in Berlin.
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Research updates, April 28
The written memorials of over 500 people who had myalgic encephalomyelitis (ME) were analyzed in a new study in PLoS One. Researchers found themes of clinical neglect and broad institutional failure, among others.
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“It felt like a life-or-death choice”: Pregnancy with Long COVID has many unknowns
Little is known so far about how people with Long COVID experience pregnancy, but some insights can be gleaned from myalgic encephalomyelitis (ME) as well as several ongoing studies in this area.
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Marcia: Life with severe ME is like screaming into the void
Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
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