essay

I worked in homeless services for years. It didn’t help me find accessible housing when I got Long COVID.

Commentary, Policy & Advocacy

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By

Rachel Litchman

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June 26, 2026

The 1988 amendments to the Fair Housing Act were supposed to address inaccessibility in housing by requiring buildings constructed after 1991 to meet certain accessibility requirements. In practice, however, less than 1% of the nation’s housing stock was fully wheelchair accessible as of 2022, most of it financially out of reach to people with disabilities,…
Work until you disappear: Long COVID ensnared me in an exploitative health system

Commentary, International

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By

Daphne Sara Safaei

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June 16, 2026

The disease emphasizes the racism and ableism of the public health sector in Germany. People with disabilities and chronic illnesses must be prioritized over profits.
I developed Long COVID while practicing medicine. The system had no place for me.

Commentary, International

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By

Mustafa Talat

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April 17, 2026

I was three hours into my internal medicine ward call when the brain fog descended like a curtain dropping mid-performance.
Alice Wong showed us Disability Justice makes our advocacy stronger

Commentary, Policy & Advocacy

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By

Charlie McCone

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April 10, 2026

With her #PodSaveJon campaign, she helped deliver one of the Long COVID movement’s best moments.
I moved into a tiny home in the woods after getting Long COVID.

Commentary

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By

Jasper Brown

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April 7, 2026

I’m writing at my kitchen counter in a 160-square-foot tiny house overlooking a stand of tall, regal pines laden with snow. The wood stove is going. A whiteboard is on the wall, listing daily chores like “chop wood” and “shovel driveway.” There’s also a quote from Dean Spade in red that says, “No one is…
Marcia: Life with severe ME is like screaming into the void

Commentary

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By

Marcia Doherty

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March 20, 2026

Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.

Commentary

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By

eZme Fern

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March 7, 2026

I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…
“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.

Arts & Culture, Commentary

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By

Shielding Cournoyer

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February 13, 2026

The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.
Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition

Arts & Culture, Commentary

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By

Kayli Jamieson

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February 2, 2026

Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.
Long COVID advocacy is incomplete without sex workers

Arts & Culture, Commentary

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By

Khalil (Kae) Dennis

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January 6, 2026

To Olive and other Black queer community members, many Long COVID advocates pay lip service to the disease’s disproportionate effects on Black, Brown, and trans communities while excluding those voices from larger policy discussions.