essay
-
I developed Long COVID while practicing medicine. The system had no place for me.
I was three hours into my internal medicine ward call when the brain fog descended like a curtain dropping mid-performance.
-
Alice Wong showed us Disability Justice makes our advocacy stronger
With her #PodSaveJon campaign, she helped deliver one of the Long COVID movement’s best moments.
-
I moved into a tiny home in the woods after getting Long COVID.
I’m writing at my kitchen counter in a 160-square-foot tiny house overlooking a stand of tall, regal pines laden with snow. The wood stove is going. A whiteboard is on the wall, listing daily chores like “chop wood” and “shovel driveway.” There’s also a quote from Dean Spade in red that says, “No one is…
-
Marcia: Life with severe ME is like screaming into the void
Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
-
My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.
I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…
-
“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.
The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.
-
Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition
Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.
-
Long COVID advocacy is incomplete without sex workers
To Olive and other Black queer community members, many Long COVID advocates pay lip service to the disease’s disproportionate effects on Black, Brown, and trans communities while excluding those voices from larger policy discussions.
-
You know someone with Long COVID. They need you to ask about it genuinely.
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
-
We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet.
We are now recruiting for the Long COVID Treatment Trial-Tirzepatide (LoCITT-T), which participants can complete entirely from bed.
Follow Us
get the latest long covid news
Trending
Recent ARTICLES
Tags
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance