HHS
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“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises
New website receives mixed reviews from Long COVID advocates and researchers; some do not expect to see any meaningful support from the Trump administration.
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HHS hosts event and announces new initiatives for Lyme disease, but advocates are skeptical about follow-through
The Lyme disease roundtable followed a similar event on Long COVID, which still hasn’t led to action on the disease
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It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium.
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
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Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FDA) for the autoimmune disease myasthenia gravis. Without warning, the trial was canceled in June 2024.
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Kennedy’s HHS commits to Long COVID, but without clear funding
Following two roundtable discussions with leading researchers and government officials — but limited patient engagement — HHS announced a public awareness campaign and medical resource platform
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The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.
Recent policy changes around COVID-19 vaccines are already sowing chaos and confusion and restricting vaccine access — including for people who should still be eligible to receive them.
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Secretary Kennedy promises to support Long COVID treatment research in Senate hearing, says son is “dramatically affected”
Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill Cassidy (R-L.A.), who chairs the HELP Committee, asked about federal health agencies’ commitment to addressing Long COVID in his first question to the Secretary.
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Letter to the editors: The University of Washington’s Long COVID clinic
In February, The Sick Times published a story highlighting how educating primary care doctors about Long COVID could help address some of the challenges people face in finding healthcare for the disease. The story focused on the University of Washington (UW)’s Long COVID clinic as an example of a center working to train doctors, and…
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UPDATE: RECOVER Long COVID pathobiology grants restored
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative.
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Trump administration set to abolish the Office of Long COVID Research and Practice
The Trump administration is set to dismantle the federal government’s Office of Long COVID Research and Practice (OLC) this week as part of a larger restructuring of health agencies, sources have told The Sick Times. This news, also reported by POLITICO and the Substack Inside Medicine, represents another blow among several moves this administration has…
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