advocacy
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How to protect your community from ICE when you have Long COVID
People are taking on immigration enforcement from bed and the streets. We talked to two organizers for tips to participate in resistance while staying safe.
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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?
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Every social justice movement is impacted by the Long COVID crisis
Long COVID disrupts struggles for justice, as activists and organizers with the disease are forced to suspend or change their tactics, facing a community that largely ignores COVID precautions.
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A toolkit for new advocates: What I learned from the Long COVID Moonshot campaign
While the multi-billion dollar Long COVID Moonshot bill is currently stalled, advocates learned many important lessons that the community must carry into future efforts.
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Thousands “lie in” for German ME protests
The demonstrations, organized by the group #LiegendDemo, took place in 42 cities across the country. Advocates demanded an end to “psychosomatic treatment of ME,” mandatory training for medical professionals, and large scale public health campaigns, and more. To mark International Myalgic Encephalomyelitis (ME) Awareness Day, advocates participated in marches and “lie in” protests in 42…
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Long COVID advocates demand biological research at a conference in Paris
We spoke with the two organizations behind the viral moment where advocates interrupted speakers at the Long COVID EU Project event.
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COVID-19 spreads year round. Here’s how to track it.
Our webinar answered common questions about following data for COVID-19 and other infectious diseases.
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Long COVID is significantly underreported across the globe
Long COVID, which has affected more than 400 million people around the world, is often underreported, particularly in low- and middle-income countries (LMICs).
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Alice Wong showed us Disability Justice makes our advocacy stronger
With her #PodSaveJon campaign, she helped deliver one of the Long COVID movement’s best moments.
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Long COVID Awareness Day 2026: Inside the growing organizing efforts to recognize the disease
Long COVID Awareness Day is gaining official recognition around the world, driven by a growing network of people with Long COVID and their allies. In our season two premiere of Still Here, hosts Betsy Ladyzhets and Miles Griffis talk to Nicholas Rodelo of Clean Air Los Angeles about how he and his fellow organizers secured…
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