advocacy

Trans people with Long COVID navigate a new “dark age” in trans health

Health, Investigations, Policy & Advocacy

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By

Khalil (Kae) Dennis

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October 13, 2026

We spoke with and surveyed dozens of trans people navigating gender-affirming care and Long COVID during Trump’s second term.
Anil van der Zee receives Dutch royal distinction

International, Policy & Advocacy

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By

David Tuller

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October 2, 2026

The newly knighted ME advocate discusses his royal honor with David Tuller.
People with Long COVID demand pause of McMaster University clinical trial

Policy & Advocacy, Science

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By

Simon Spichak

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September 22, 2026

The trial, run by researchers at McMaster University in Canada, is testing the Lightning Process, a pseudoscientific mind-body program that outside experts have heavily criticized.
Denial is a tactic for both the COVID-19 and climate crises

Commentary

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By

Selina Nwulu

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September 15, 2026

Corporate interests have had more say in our behaviors toward both COVID-19 and the climate crisis than any evidence-based public health response.
Department of Defense funds $8 million grant for Long COVID trials

Policy & Advocacy, Science

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By

Betsy Ladyzhets

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September 1, 2026

A new U.S. clinical trials program called PROBE-PASC was announced on Friday at a Long COVID conference in Amsterdam. The program received initial funding of $8 million from a Department of Defense (DOD) grant.
Congress’s 2027 budget could include new funding for Long COVID and ME

Policy & Advocacy

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By

Betsy Ladyzhets

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August 18, 2026

Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new Long COVID funding in the fiscal year 2027 budget as legislators debate appropriations bills in the coming weeks.
How to protect your community from ICE when you have Long COVID

Commentary, Policy & Advocacy

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By

Miranda DeNovo

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July 7, 2026

People are taking on immigration enforcement from bed and the streets. We talked to two organizers for tips to participate in resistance while staying safe.
The U.K.’s plan for ME has failed us. Members of parliament must step up.

Commentary, International, Policy & Advocacy

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By

Nick Benton

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June 19, 2026

No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?
Every social justice movement is impacted by the Long COVID crisis

Health, Policy & Advocacy

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By

Britta Shoot

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June 9, 2026

Long COVID disrupts struggles for justice, as activists and organizers with the disease are forced to suspend or change their tactics, facing a community that largely ignores COVID precautions.
A toolkit for new advocates: What I learned from the Long COVID Moonshot campaign

Commentary, Policy & Advocacy

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By

Lisa Kava

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May 19, 2026

While the multi-billion dollar Long COVID Moonshot bill is currently stalled, advocates learned many important lessons that the community must carry into future efforts.