advocacy
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Long COVID is significantly underreported across the globe
Long COVID, which has affected more than 400 million people around the world, is often underreported, particularly in low- and middle-income countries (LMICs).
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Alice Wong showed us Disability Justice makes our advocacy stronger
With her #PodSaveJon campaign, she helped deliver one of the Long COVID movement’s best moments.
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Long COVID Awareness Day 2026: Inside the growing organizing efforts to recognize the disease
Long COVID Awareness Day is gaining official recognition around the world, driven by a growing network of people with Long COVID and their allies. In our season two premiere of Still Here, hosts Betsy Ladyzhets and Miles Griffis talk to Nicholas Rodelo of Clean Air Los Angeles about how he and his fellow organizers secured…
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Austin recognizes Long COVID Awareness Day, events happen around the world
Around the world, people with Long COVID recognized International Long COVID Awareness Day with events, demonstrations, and buildings lit up in teal. Austin, Texas, is the latest city to recognize the day, through a proclamation from the Austin city council — a major step in the state.
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Los Angeles recognizes Long COVID Awareness Day
Local advocates pushed America’s second largest city to formally observe the day on March 15.
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Maryland considers Long COVID innovation bill
Maryland may soon become the first U.S. state to directly support Long COVID research and development. The state’s government is considering a bill that would establish a grant and loan program dedicated to the disease, potentially funding scientists and start-ups based in Maryland.
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Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition
Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.
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Telehealth is vital for people with Long COVID. Don’t let it disappear.
Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis
This fall, an international group of people known as Team Nevra has led an ongoing campaign to fundraise and help find care for Nevra Elis, an advocate living with severe myalgic encephalomyelitis (ME).
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.
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