commentary

Marcia: Life with severe ME is like screaming into the void

Commentary

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By

Marcia Doherty

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March 20, 2026

Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide

Commentary, Health

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By

sick times

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March 12, 2026

Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject this narrative. We collaborated to create a treatment guide.
My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.

Commentary

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By

eZme Fern

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March 7, 2026

I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…
How to write an op-ed about Long COVID

Commentary

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By

Miles W. Griffis

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February 24, 2026

Op-eds, sometimes known as opinion or commentary, have been powerful in raising awareness and providing solutions for Long COVID, from early reports of the disease to calls to action that have inspired legislation.
Severe people may hold answers to Long COVID. They must be included in research.

Commentary, Science

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By

SEVDA SARIKAYA

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January 13, 2026

People with the most severe symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. Their exclusion is not a procedural oversight but a scientific failure, and correcting it is essential for any program committed to understanding the full spectrum of the disease.
Telehealth is vital for people with Long COVID. Don’t let it disappear.

Commentary, Health

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By

Aly Laube

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December 19, 2025

Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients

Commentary, Policy & Advocacy

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By

Miranda DeNovo

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December 9, 2025

Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.
You know someone with Long COVID. They need you to ask about it genuinely.

Commentary

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By

Philip Hoover

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November 28, 2025

If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet.

Commentary, Science

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By

Julia Moore Vogel

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October 30, 2025

We are now recruiting for the Long COVID Treatment Trial-Tirzepatide (LoCITT-T), which participants can complete entirely from bed.
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.

Commentary

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By

sick times

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October 10, 2025

We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FDA) for the autoimmune disease myasthenia gravis. Without warning, the trial was canceled in June 2024.