commentary
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Breast cancer exposed the lack of care I receive for Long COVID
Cancer has a sadly well-worn path. It showed me that I deserve dignity and support for Long COVID.
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There’s a long history of person-first language in advocacy. Here’s why we should use it for Long COVID.
Labeling people with Long COVID as “patients” is stigmatizing and personally and politically harmful. It strips personal agency. And frankly, it’s bad PR.
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How to protect your community from ICE when you have Long COVID
People are taking on immigration enforcement from bed and the streets. We talked to two organizers for tips to participate in resistance while staying safe.
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Editor’s letter: Fight Long COVID denial by becoming a Supporter of The Sick Times
Before I started working at The Sick Times as your friendly neighborhood engagement editor, I let every medical professional I met bulldoze me.
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I worked in homeless services for years. It didn’t help me find accessible housing when I got Long COVID.
The 1988 amendments to the Fair Housing Act were supposed to address inaccessibility in housing by requiring buildings constructed after 1991 to meet certain accessibility requirements. In practice, however, less than 1% of the nation’s housing stock was fully wheelchair accessible as of 2022, most of it financially out of reach to people with disabilities,…
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The U.K.’s plan for ME has failed us. Members of parliament must step up.
No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?
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We must free Long COVID and the people living with it from the mind-body trap
There is a recurring pattern in the history of medicine that still pops up from time to time. When our understanding of a disease lags far behind the need for explanations, biology becomes a matter of one’s own perception. This inevitably shifts the burden of proof back onto the people we should be helping; those…
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Research ethics boards need urgent training on Long COVID and myalgic encephalomyelitis
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t use validated measures for post-exertional malaise (PEM). But the Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation (PREFACER) study, run by researchers at Western…
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We need masks in healthcare. Now.
As a person with Long COVID, losing consciousness was a terrifying experience made worse by a potential exposure risk. I quickly put my mask back on and thankfully managed to escape unscathed. But this experience reinforced how much power healthcare providers have over those in their care.
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Marcia: Life with severe ME is like screaming into the void
Begging for my life on the internet, staying alive month to month on donations from strangers, attempting to get a foothold of logic in policies and ways of thinking that are entrenched in illogical bias: these rob hope of its strength. And when you’re approved for Medical Assistance in Dying (MAiD) on quality of life, despair is…
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