
Before I started working at The Sick Times as your friendly neighborhood engagement editor, I let every medical professional I met bulldoze me.Â

The 1988 amendments to the Fair Housing Act were supposed to address inaccessibility in housing by requiring buildings constructed after 1991 to meet certain accessibility requirements. In practice, however, less than 1% of the nation’s housing stock was fully wheelchair accessible as of 2022, most of it financially out of reach to people with disabilities,…

No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomyelitis in the United Kingdom?

There is a recurring pattern in the history of medicine that still pops up from time to time. When our understanding of a disease lags far behind the need for explanations, biology becomes a matter of one’s own perception. This inevitably shifts the burden of proof back onto the people we should be helping; those…

Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t use validated measures for post-exertional malaise (PEM). But the Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation (PREFACER) study, run by researchers at Western…

As a person with Long COVID, losing consciousness was a terrifying experience made worse by a potential exposure risk. I quickly put my mask back on and thankfully managed to escape unscathed. But this experience reinforced how much power healthcare providers have over those in their care.

Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject this narrative. We collaborated to create a treatment guide.

I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…

Op-eds, sometimes known as opinion or commentary, have been powerful in raising awareness and providing solutions for Long COVID, from early reports of the disease to calls to action that have inspired legislation.
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance