government policy
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I worked in homeless services for years. It didn’t help me find accessible housing when I got Long COVID.
The 1988 amendments to the Fair Housing Act were supposed to address inaccessibility in housing by requiring buildings constructed after 1991 to meet certain accessibility requirements. In practice, however, less than 1% of the nation’s housing stock was fully wheelchair accessible as of 2022, most of it financially out of reach to people with disabilities,…
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How is Minnesota addressing Long COVID?
As many governments shutter and defund their Long COVID programs, Minnesota is ramping up.
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A toolkit for new advocates: What I learned from the Long COVID Moonshot campaign
While the multi-billion dollar Long COVID Moonshot bill is currently stalled, advocates learned many important lessons that the community must carry into future efforts.
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RECOVER’s first round of clinical trials are failing. Will the next phase be better?
The NIH studies found that Paxlovid, ivabradine, and computer games did not significantly improve symptoms of Long COVID. Further analysis that may help future research research has not yet been released.
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What is the federal government currently doing about Long COVID?
In this episode of Still Here, hosts Betsy Ladyzhets and Miles Griffis talk about the latest updates from the US Department of Health and Human Services and their efforts on Long COVID, as well as the criticisms they face from members of the community. Subscribe to Still Here wherever you get your podcasts, and leave…
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“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises
New website receives mixed reviews from Long COVID advocates and researchers; some do not expect to see any meaningful support from the Trump administration.
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Austin recognizes Long COVID Awareness Day, events happen around the world
Around the world, people with Long COVID recognized International Long COVID Awareness Day with events, demonstrations, and buildings lit up in teal. Austin, Texas, is the latest city to recognize the day, through a proclamation from the Austin city council — a major step in the state.
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Maryland considers Long COVID innovation bill
Maryland may soon become the first U.S. state to directly support Long COVID research and development. The state’s government is considering a bill that would establish a grant and loan program dedicated to the disease, potentially funding scientists and start-ups based in Maryland.
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HHS hosts event and announces new initiatives for Lyme disease, but advocates are skeptical about follow-through
The Lyme disease roundtable followed a similar event on Long COVID, which still hasn’t led to action on the disease
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.
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