
Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject this narrative. We collaborated to create a treatment guide.

I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…

Op-eds, sometimes known as opinion or commentary, have been powerful in raising awareness and providing solutions for Long COVID, from early reports of the disease to calls to action that have inspired legislation.

The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.

Help break the stigma around Long COVID by sharing your story with the public. In this free webinar on February 19, The Sick Times editors and guest speakers will demystify the process of writing and pitching op-eds and essays on Long COVID.

Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.

People with the most severe symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. Their exclusion is not a procedural oversight but a scientific failure, and correcting it is essential for any program committed to understanding the full spectrum of the disease.

To Olive and other Black queer community members, many Long COVID advocates pay lip service to the disease’s disproportionate effects on Black, Brown, and trans communities while excluding those voices from larger policy discussions.

Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.

Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.





advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance