advocacy
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Telehealth is vital for people with Long COVID. Don’t let it disappear.
Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis
This fall, an international group of people known as Team Nevra has led an ongoing campaign to fundraise and help find care for Nevra Elis, an advocate living with severe myalgic encephalomyelitis (ME).
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.
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The future of Medicaid is “really scary” for people with Long COVID
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disadvantaged groups hard. For many with Long COVID, the cuts put their lives and well-being at risk.
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“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague
Demonstrations for post-acute infection syndromes including Long COVID, Lyme, and myalgic encephalomyelitis (ME) took place on November 30 in The Hague, Netherlands as a part of the #HetPAISProtest led by the group #NietHersteld (Not Recovered).
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Alice Wong, disability activist and luminary, dies at 51
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
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Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
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As the American West faces increasing air pollution, protecting the right to mask is vital
Utah’s proposed ban became an important case study demonstrating the overlapping concerns between airborne pathogens and environmental air pollution. It highlighted the necessity of building coalitions between environmental, health and disability, and civil liberties groups in resisting mask bans as climate change is on track to worsen a variety of environmental public health threats, not…
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Business school competition centers Long COVID and IACCs
At this case competition in Ann Arbor, Michigan, the winning team sought to better connect people with IACCs and healthcare providers who serve them.
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It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium.
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
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Trans people with Long COVID navigate a new “dark age” in trans health
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