disability
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Telehealth is vital for people with Long COVID. Don’t let it disappear.
Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.
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You know someone with Long COVID. They need you to ask about it genuinely.
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
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Alice Wong, disability activist and luminary, dies at 51
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
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Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you.
Some people with Long COVID are receiving potentially unhelpful diagnoses of functional neurological disorder (FND), a condition in which people experience neurological symptoms that cannot be attributed to known or currently identifiable pathophysiological causes.
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Germany’s “Reha” clinics aren’t set up for Long COVID. And patients are reporting harm.
The country’s pension insurance system pushes people to go through rehabilitation (“Reha”) clinics before they can access disability supports.
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Long COVID taught me to slow down and stop trying to meet able-bodied benchmarks
My life before Long COVID was very busy. I was in college, partying a lot and working as an artist and activist. I didn’t make time to rest, and it caused me to burn out. I tried to do everything at once and became overwhelmed.
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Long COVID is increasing housing insecurity, but support programs fail to help
A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.
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Traveling with Long COVID is a challenge. Here’s how I made my journey safer.
Last fall, I went on a trip to Ireland, traveling thousands of miles from my home in Illinois. I encountered many obstacles on my journey, but in the end was able to balance my energy and disability with some enjoyable ventures. I’m happy to report that I achieved my goal.
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