essay
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My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.
I watch through the window as the seasons change, spring to summer. The heat permeates, the neighbor kids run and play. Sprinklers soaking their bodies as they dance in glee. My ten-year-old child, J, sits stimming, gleefully twisting at the waist from side to side, as their hair blows in the breeze, trying to sign.…
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“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.
The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.
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Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition
Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.
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Long COVID advocacy is incomplete without sex workers
To Olive and other Black queer community members, many Long COVID advocates pay lip service to the disease’s disproportionate effects on Black, Brown, and trans communities while excluding those voices from larger policy discussions.
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You know someone with Long COVID. They need you to ask about it genuinely.
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
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We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet.
We are now recruiting for the Long COVID Treatment Trial-Tirzepatide (LoCITT-T), which participants can complete entirely from bed.
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Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved.
On October 31, at the University of Michigan’s Ross School of Business in Ann Arbor, top graduate students will compete to develop innovative business solutions for the IACC community. This event, which will be open to the public, will include testimonials from people with Long COVID and an expert panel, as well as the competition…
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Patricia Lockwood explores the depths of Long COVID in the new novel “Will There Ever Be Another You”
In her new novel Will There Ever Be Another You, which chronicles her experience of the COVID-19 pandemic, literary icon Patricia Lockwood writes, “‘Please don’t write about it,’ people were already begging each other, so she kept the notebook secret.”
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How do you get people to care about COVID-19? Here’s what I’ve learned as an organizer.
As someone with Long COVID, it’s demoralizing to see people in my circles party and engage in COVID-risky behaviors while I sit at home. It would be easy to turn my back on those people and give up on community organizations that minimize COVID-19. But that’s not me, and that’s not what being in community…
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Long COVID taught me to slow down and stop trying to meet able-bodied benchmarks
My life before Long COVID was very busy. I was in college, partying a lot and working as an artist and activist. I didn’t make time to rest, and it caused me to burn out. I tried to do everything at once and became overwhelmed.
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My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.
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Two new books help children understand how Long COVID impacts their family members
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