healthcare
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Still Here, August 6: Links and transcript
In this episode of Still Here: Recapping the Patient-Led Research Fund summer 2025 webinar.
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Still Here, July 24: Links and transcript
In this episode of Still Here: Contributing writer Simon Spichak discusses what experts say are Canada’s “contradictory” and “concerning” latest guidelines for Long COVID, the CAN-PCC.
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Left without care: Many Long COVID clinics are closing down in the U.K.
Fewer than half of U.K. Long COVID clinics will stay open this year, according to research from the charity Long COVID Support. At their peak, there were 120 clinics across the U.K., but only 46 have confirmed they will remain open.
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Still Here, July 11: Links and transcript
In this episode of Still Here: Contributing writer Britta Shoot discusses the patchwork of care for people with complex chronic illnesses and how insurance providers create a lose-lose situation for patients and healthcare providers.
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Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning”
Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.
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Priced out: Some Long COVID and ME specialists charge high prices for concierge care
One specialist is charging up to $8,500 a month. But the providers say insurance companies are to blame. Key points you should know: Rachel Graves knows of exactly two neurologists specializing in dysautonomia in Washington state. In addition to dysautonomia, Graves, who lives in Tacoma, has been diagnosed with numerous conditions, including hypermobile Ehlers–Danlos syndrome…
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UNC shuts down Long COVID clinic, leaving thousands without specialized care
Before it closed last week, the University of North Carolina’s clinic was a leading site for Long COVID care in the U.S. South.
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Emergency departments aren’t trained for Long COVID — and patients are paying the price
What do you call a system that doesn’t believe you’re sick until you’re dying? While emergency clinicians are trained to handle acute medical situations, many lack even a basic understanding of Long COVID and related diseases, such as myalgic encephalomyelitis (ME).
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COVID-19 triggered a life-threatening pulmonary embolism that led to long-term lung damage. It took two ER trips before doctors believed me.
It started with chest pain. I woke up in the middle of the night and realized I couldn’t take a deep breath. I immediately pulled up the internet to search my symptoms. It turns out, anything with the search terms “chest pain” and “trouble breathing” leads to the same advice: go straight to the emergency room…
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This surgery fuses people’s skulls to their spines to treat a condition overlapping with myalgic encephalomyelitis
A growing number of doctors agree that a minority of people with severe ME are like Brea: Some of their symptoms are caused by cranio-cervical instability linked to connective tissue disorders. Viruses including SARS-CoV-2 have been shown to degrade connective tissue, Ruhoy points out, which could be a big issue for people with Long COVID…
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