
Current diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS), a common comorbidity of Long COVID, are restrictive. The Ehlers-Danlos Society is developing new hEDS criteria that will be released in 2026.

A growing number of doctors agree that a minority of people with severe ME are like Brea: Some of their symptoms are caused by cranio-cervical instability linked to connective tissue disorders. Viruses including SARS-CoV-2 have been shown to degrade connective tissue, Ruhoy points out, which could be a big issue for people with Long COVID…

“For a middle-aged woman who hasn’t had any actual injuries, I’ve had a huge amount of physical therapy,” says Liza DiLeo Thomas, a 52-year-old emergency medicine doctor in New Orleans and mom to five kids. “My neck muscles were always weak, my knees were bad. In retrospect, I was actually hypermobile, I just didn’t realize…





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