
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.

The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disadvantaged groups hard. For many with Long COVID, the cuts put their lives and well-being at risk.

The country’s pension insurance system pushes people to go through rehabilitation (“Reha”) clinics before they can access disability supports.

One specialist is charging up to $8,500 a month. But the providers say insurance companies are to blame. Key points you should know: Rachel Graves knows of exactly two neurologists specializing in dysautonomia in Washington state. In addition to dysautonomia, Graves, who lives in Tacoma, has been diagnosed with numerous conditions, including hypermobile Ehlers–Danlos syndrome…

Based on my past experiences, I fear that many Americans – including myself – may soon be deprived of the accessible, affordable healthcare we desperately need. Listen to Bobbi Dempsey discuss this essay on our podcast (timestamp: 14:20): It’s not an exaggeration to say that the Affordable Care Act (ACA) saved my life. Nearly 15…
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