
A nationwide survey reveals the uncertain state of specialized care for Americans living with the chronic disease

The clinic sought to cure “neuroimmune disorders” like Long COVID and myalgic encephalomyelitis. Former patients feel betrayed.

RTHM and TurnTo recently debuted Long COVID intelligence platforms. Some have found them helpful, but others are concerned about AI.

Fewer than half of U.K. Long COVID clinics will stay open this year, according to research from the charity Long COVID Support. At their peak, there were 120 clinics across the U.K., but only 46 have confirmed they will remain open.

One specialist is charging up to $8,500 a month. But the providers say insurance companies are to blame. Key points you should know: Rachel Graves knows of exactly two neurologists specializing in dysautonomia in Washington state. In addition to dysautonomia, Graves, who lives in Tacoma, has been diagnosed with numerous conditions, including hypermobile Ehlers–Danlos syndrome…

Before it closed last week, the University of North Carolina’s clinic was a leading site for Long COVID care in the U.S. South.

This week, co-host Betsy Ladyzhets recaps her reporting tour of the new Long COVID and complex disease center at Mount Sinai, with additional commentary from co-host Miles Griffis.

Last week, a new center serving people with Long COVID and related complex chronic diseases opened at Mount Sinai Health System in New York City. Led by Dr. David Putrino, the center will be a hub for diagnosing these diseases, helping patients manage their symptoms, and running clinical trials of novel treatments. The Cohen Center…

Latinos and African Americans suffer the nation’s highest rates of Long Covid. Yet systematic health care inequality and poor outreach have resulted in clinics with mostly white patient lists. Editor’s note: This story was co-published by palabra., a media platform by the National Association of Hispanic Journalists (NAHJ), and WHYY’s The Pulse. It was supported by The Commonwealth…

This fall, the federal government announced a new grant program to support Long Covid care: the Agency for Healthcare Research and Quality (AHRQ) awarded million-dollar grants to nine Long Covid clinics across the country, designed to help these centers extend their reach and develop best practices for addressing this complex chronic disease. Each clinic can…
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