ME
-
“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction, demonstrators demanded that the federal government fund ME research and preserve vital social support systems like Medicaid and telemedicine.
-
Minnesota House budget proposes eliminating state Long COVID program
Cuts could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis.
-
This surgery fuses people’s skulls to their spines to treat a condition overlapping with myalgic encephalomyelitis
A growing number of doctors agree that a minority of people with severe ME are like Brea: Some of their symptoms are caused by cranio-cervical instability linked to connective tissue disorders. Viruses including SARS-CoV-2 have been shown to degrade connective tissue, Ruhoy points out, which could be a big issue for people with Long COVID…
-
“It’s like torture”: The tilt table test could be risky for many people with Long COVID
“The tilt table test is likely to be contraindicated in people with severe ME/CFS and related conditions,” Harvey said. Studies show about half of all Long COVID patients meet the diagnostic criteria for ME, a disease marked by debilitating post-exertional malaise (PEM). Harvey is not alone. A dozen people with ME and Long COVID interviewed…
-
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases
Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. Writer’s note: In this essay, I deliberately capitalize different categories of ME in order to give each the weight and dignity they deserve. I also choose to distinguish between the Sick and the Well to highlight our status…
-
The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign.
In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is precisely why the #JohnVsJonVsME campaign began.
-
Research updates, March 25
-
My husband and I have both had ME for decades, then our son got Long COVID
When our seventeen-year-old son Nick developed Long COVID after suffering a pulmonary haemorrhage in 2022, like any parents, we were devastated. But for us it hit harder. History was repeating itself — and it was something we had dreaded since having children.
-
“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review
For decades, Cochrane — formerly called the Cochrane Collaboration — has been known internationally for its systematic reviews of medical treatments and interventions. Now the U.K.-based charity is under fire for its clumsy handling of a thorny issue: the status of a flawed 2019 review of exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
-
“Marching from home”: New rock musical embodies the challenges and resistance of people with energy-limiting diseases
Last weekend, a lucky group of disabled and chronically ill theatergoers in New York City attended a show that reflected their experiences and access needs. The new, non-narrative rock musical, called “Dan Fishback is Alive, Unwell, and Living in his Apartment,” ran for two sold-out performances at the Public Theater’s Joe’s Pub on Saturday and…
Follow Us
get the latest long covid news
Trending
Recent ARTICLES
-
A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide
-
Where have all the Long COVID clinics gone?
-
National COVID-19 trends, March 10
-
Research updates, March 10
-
My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.
Tags
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance