POTS
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Research updates, February 3
The Food and Drug Administration (FDA) has granted expanded access to the stem cell infusion RegeneCyte for Long COVID.
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Research updates, January 20
A new study in eBioMedicine found neurological Long COVID symptoms were associated with increased pTau-181 levels, a marker of brain inflammation that has been tied to Alzheimer’s disease.
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Research updates, December 23
Two recent studies state that Long COVID is an occupational disease.
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As a linguist, I want to find the words to measure chronic illness
So what words can I, a linguist and a patient with sensations perceivable only to me, use to fully capture these mast cell activation syndrome (MCAS) and postural orthostatic tachycardia syndrome (POTS) sensations to my providers? And, more generally, how can we measure our unsettling internal realities if we can’t even name them?
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“It’s like torture”: The tilt table test could be risky for many people with Long COVID
“The tilt table test is likely to be contraindicated in people with severe ME/CFS and related conditions,” Harvey said. Studies show about half of all Long COVID patients meet the diagnostic criteria for ME, a disease marked by debilitating post-exertional malaise (PEM). Harvey is not alone. A dozen people with ME and Long COVID interviewed…
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The sick soft butch who did: How confronting a racist in my neighborhood helped me claim my Long COVID identity
The last thing I thought before I smashed, face first, into the New York City sidewalk, was, Dang, my wife’s going to want me to start taking my cane with me everywhere I go. But mostly, I was worried one of my neighbors would watch me tumble over and go limp.
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Research updates, February 4
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Solange Knowles thanks chronic illness community, shares POTS, MCAS, and Sjögren’s diagnoses
Earlier this week, Grammy-award winning musician Solange Knowles briefly shared three diagnoses and paid gratitude to the chronic illness community. Knowles replied in the comments of a Shaun Ross Instagram…
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