Miles W. Griffis
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Social media users ask, “Where is Mandy?” as CDC director stays out of spotlight during Covid surge
Despite what might be the second biggest surge of the entire pandemic, CDC director Mandy Cohen has been absent from her official CDC social media accounts. Similarly, the CDC has yet to issue any press releases or public service announcements specifically about the JN.1 surge, which may be infecting over one million Americans each day…
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Research updates, January 16
New research for the week of January 16 include a study examining viral persistence in people with Long Covid, the link between Epstein-Barr virus and Multiple Sclerosis, and a therapy used for chest pain that may have Long Covid applications.
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What’s happening this week, January 9
A new study in Nature Communications confirms what so many people with post-exertional malaise (PEM) have been saying for decades: exercise can make us worse. Plus: research about Paxlovid and returning to work, an upcoming march in DC, an important NIH webinar.
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Long Covid advocates send “unhappy holiday” cards to their representatives
This month, the organizers of Long Covid Moonshot put together an “Unhappy Holidays” card, letter, and calling campaign directed at legislators. Some from the international community joined in too, writing cards to their respective governments. The creative effort featured colorful, funny, and heartbreaking letters from people with Long Covid and their allies to advocate for…
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#MEAction co-founder Beth Mazur passes away
On Friday, the ME advocacy group #MEAction shared that their co-founder, Beth Mazur, passed away after living with myalgic encephalomyelitis (ME) for 15 years. “She was a selfless beacon of hope and light for so many in our community and she demonstrated an unwavering commitment to the cause,” #MEAction wrote on their website.
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Policy experts, scientists, disability groups urge Biden to address the Long Covid crisis
A wide breadth of policy experts, scientists, and disability groups are calling on President Biden to urgently address the Long Covid crisis with annual funding in the billions. In the open letter published on Monday, health policy experts, leading Long Covid researchers, clinicians, journalists, chronic illness and health advocacy groups, and many others demand that…
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Virtual town hall recording now available
Thanks to everyone who came to our virtual town hall last week! We received incredible feedback, comments, and story ideas from the community. A recording of the first few minutes of the meeting, featuring an overview and update from our co-editors, is now available.
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What’s happening this week, December 12
Research updates for the week of December 12 include clinical trial findings from a microbiome study, Long Covid prevalence in Africa, and ME in the U.S. Upcoming events include arts and poetry workshops.
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HIV may increase the risk of Long Covid. Why aren’t major advocacy groups addressing it?
Advocates say that the government is not doing enough to support people with Long Covid, nor are most well-funded LGBTQ+ or HIV advocacy groups, even though Long Covid may be burdensome for their communities. Recent studies suggest that HIV may be an increasedrisk factor for Long Covid and that people with HIV have an elevated…
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What’s happening this week, December 5
Research updates and events for this week include two papers advancing the study of potential Long Covid biomarkers, The Sick Times’ town hall, and an update on ME/CFS research from the NIH.
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