
The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.

Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.

Illustrators who bravely explore the ongoing pandemic in their work break down stereotypes, contextualize differing experiences, build community, and raise awareness. These artists create spaces where audiences can reflect and engage with stories that can broaden our understanding of ourselves and the world.

Last fall, Brooklyn-based musician Dave Ruder coined a new format when he released a “Long COVID album,” shaped by his experience with the disease.

To Olive and other Black queer community members, many Long COVID advocates pay lip service to the disease’s disproportionate effects on Black, Brown, and trans communities while excluding those voices from larger policy discussions.

Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.

In her new novel Will There Ever Be Another You, which chronicles her experience of the COVID-19 pandemic, literary icon Patricia Lockwood writes, “‘Please don’t write about it,’ people were already begging each other, so she kept the notebook secret.”

This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her life and died in January 2023 at just 32 years old. Despite a life of immense pain and restriction, Kara…

Derrick Kardos, an Oscar-nominated graphic designer and Long COVID advocate, died on July 18 at the age of 53 due to complications of Long COVID, his family recently announced.

Taipei is a drag queen in dramatic vampy makeup and a platinum blonde bob hairstyle. She wears a glitter burgundy dress with a bright red fur lined jacket over the top. She summarizes the unique ways in which Long COVID affects the queer and trans communities, showing examples of articles to illustrate her talking points.
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