
When I signed up for a clinical trial, I expected it to be thought provoking at best and onerous at worst. I didn’t expect it to change my life.

It started with chest pain. I woke up in the middle of the night and realized I couldn’t take a deep breath. I immediately pulled up the internet to search my symptoms. It turns out, anything with the search terms “chest pain” and “trouble breathing” leads to the same advice: go straight to the emergency room…

In February, The Sick Times published a story highlighting how educating primary care doctors about Long COVID could help address some of the challenges people face in finding healthcare for the disease. The story focused on the University of Washington (UW)’s Long COVID clinic as an example of a center working to train doctors, and…

Combining my experience building COVID-safe communities online and interviews with over a dozen COVID-cautious people who are “still COVIDing” despite a lack of community, family, and/or peer support, I learned that many are stuck in situations that make living a normal life difficult or impossible because of widespread COVID-19 denial. This essay is a collection…

Breath / is not something / anyone would dare / to hold right now, / even for luck, Ann E. Wallace wrote on the 33rd day of her acute COVID-19 case, during the first wave of the pandemic in spring 2020. Half a decade later, breathing still doesn’t come easy for the Poet Laureate Emeritus…

Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. Writer’s note: In this essay, I deliberately capitalize different categories of ME in order to give each the weight and dignity they deserve. I also choose to distinguish between the Sick and the Well to highlight our status…

In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is precisely why the #JohnVsJonVsME campaign began.

The lack of comprehensive Long COVID case counts may be considered one of public health’s greatest failures. But as we enter the sixth year of this ongoing pandemic, U.S. institutions are sweeping this mass disabling event under the rug perhaps more than ever before. We can’t let them get away with it.

It’s difficult for me to tell people about Long COVID because it’s impossible for them to understand how someone who looks so “normal” can be so sick. Most of the time, I don’t say anything. But something about Bianca’s warmth made me feel like I could. Little did I know, meeting her would lead me…

The last thing I thought before I smashed, face first, into the New York City sidewalk, was, Dang, my wife’s going to want me to start taking my cane with me everywhere I go. But mostly, I was worried one of my neighbors would watch me tumble over and go limp.
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