Commentary
-
Stop looking for a silver bullet. Start mixing the Long COVID cocktail.
Here’s what keeps me up at night: If some people are finding relief, why aren’t we scaling what might work? And why aren’t we trying multiple interventions at the same time?Â
-
How do you get people to care about COVID-19? Here’s what I’ve learned as an organizer.
As someone with Long COVID, it’s demoralizing to see people in my circles party and engage in COVID-risky behaviors while I sit at home. It would be easy to turn my back on those people and give up on community organizations that minimize COVID-19. But that’s not me, and that’s not what being in community…
-
Long COVID taught me to slow down and stop trying to meet able-bodied benchmarks
My life before Long COVID was very busy. I was in college, partying a lot and working as an artist and activist. I didn’t make time to rest, and it caused me to burn out. I tried to do everything at once and became overwhelmed.
-
Posthumous album of singer Kara Jane released on Severe ME Awareness Day
This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her life and died in January 2023 at just 32 years old. Despite a life of immense pain and restriction, Kara…
-
As a linguist, I want to find the words to measure chronic illness
So what words can I, a linguist and a patient with sensations perceivable only to me, use to fully capture these mast cell activation syndrome (MCAS) and postural orthostatic tachycardia syndrome (POTS) sensations to my providers? And, more generally, how can we measure our unsettling internal realities if we can’t even name them?
-
Between two crises: Living with Post-COVID Vaccine Syndrome in a Long COVID world
What I thought was a minor reaction became Post-COVID Vaccine Syndrome (PCVS), a condition I now live with alongside thousands of others. PCVS shares symptoms with Long COVID, including nerve pain, dysautonomia, tinnitus, fatigue, and heart issues — but faces unique stigma, leaving us dismissed and understudied.
-
Video essay: How does Long COVID affect queer and trans communities?
Taipei is a drag queen in dramatic vampy makeup and a platinum blonde bob hairstyle. She wears a glitter burgundy dress with a bright red fur lined jacket over the top. She summarizes the unique ways in which Long COVID affects the queer and trans communities, showing examples of articles to illustrate her talking points.
-
Universities get an F on Long COVID. Here’s how they can support their students and reduce COVID-19 cases.
My infection months before came and went mildly, but it soon became obvious that my sluggishness and pain were not caused by caffeine, thesis stress, or hangovers. It was Long COVID.
-
Even stones break in this heat: Experiencing Long COVID in Indonesia
Now it’s been four years. And this thing — this invisible thing — is still here. Every morning is a gamble. Will I wake up with energy? Or will my legs feel like stone? Will I be able to focus? Or will my thoughts float around like lint in the air, impossible to catch?
-
Traveling with Long COVID is a challenge. Here’s how I made my journey safer.
Last fall, I went on a trip to Ireland, traveling thousands of miles from my home in Illinois. I encountered many obstacles on my journey, but in the end was able to balance my energy and disability with some enjoyable ventures. I’m happy to report that I achieved my goal.
Follow Us
get the latest long covid news
Trending
Recent ARTICLES
Tags
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance