Policy & Advocacy
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Los Angeles recognizes Long COVID Awareness Day
Local advocates pushed America’s second largest city to formally observe the day on March 15.
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Maryland considers Long COVID innovation bill
Maryland may soon become the first U.S. state to directly support Long COVID research and development. The state’s government is considering a bill that would establish a grant and loan program dedicated to the disease, potentially funding scientists and start-ups based in Maryland.
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HHS hosts event and announces new initiatives for Lyme disease, but advocates are skeptical about follow-through
The Lyme disease roundtable followed a similar event on Long COVID, which still hasn’t led to action on the disease
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis
This fall, an international group of people known as Team Nevra has led an ongoing campaign to fundraise and help find care for Nevra Elis, an advocate living with severe myalgic encephalomyelitis (ME).
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.
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The future of Medicaid is “really scary” for people with Long COVID
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disadvantaged groups hard. For many with Long COVID, the cuts put their lives and well-being at risk.
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“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague
Demonstrations for post-acute infection syndromes including Long COVID, Lyme, and myalgic encephalomyelitis (ME) took place on November 30 in The Hague, Netherlands as a part of the #HetPAISProtest led by the group #NietHersteld (Not Recovered).
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Alice Wong, disability activist and luminary, dies at 51
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
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Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
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Recent ARTICLES
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A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide
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Where have all the Long COVID clinics gone?
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National COVID-19 trends, March 10
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Research updates, March 10
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My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.
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