Policy & Advocacy
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.
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The future of Medicaid is “really scary” for people with Long COVID
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disadvantaged groups hard. For many with Long COVID, the cuts put their lives and well-being at risk.
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“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague
Demonstrations for post-acute infection syndromes including Long COVID, Lyme, and myalgic encephalomyelitis (ME) took place on November 30 in The Hague, Netherlands as a part of the #HetPAISProtest led by the group #NietHersteld (Not Recovered).
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Alice Wong, disability activist and luminary, dies at 51
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
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Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
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As the American West faces increasing air pollution, protecting the right to mask is vital
Utah’s proposed ban became an important case study demonstrating the overlapping concerns between airborne pathogens and environmental air pollution. It highlighted the necessity of building coalitions between environmental, health and disability, and civil liberties groups in resisting mask bans as climate change is on track to worsen a variety of environmental public health threats, not…
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Business school competition centers Long COVID and IACCs
At this case competition in Ann Arbor, Michigan, the winning team sought to better connect people with IACCs and healthcare providers who serve them.
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It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium.
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
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Despite the ongoing pandemic, some companies are banning employees from masking
While some anti-mask policies have failed — a win for workers — there is a larger effort to ban masks in the U.S. on state and local levels. And more businesses may attempt to ban masks in the workplace even though these policies may violate laws that protect masks as accessibility devices. The Sick Times…
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