Science
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Research updates, April 16
Research updates for the week of April 16 include a new study adding to the evidence on viral persistence, a clinical trial looking for a blood RNA biomarker, and the biological signatures of Long Covid and ME.
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Hidden disability: The quiet struggle with Long Covid in Kenya
Despite its global reach, Long Covid is widely underreported in Africa due to a lack of awareness of the condition, inadequate clinical data, and limited access to health care. The impact on the African continent remains largely obscured by a veil of silence and neglect. In a region already burdened by health challenges, including infectious…
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Research updates, April 9
Research updates for the week of April 9 include immune system dysfunction in people with Long Covid, the importance of ventilation, and two clinical trials that are currently recruiting.
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How patient-led research could speed up medical innovation
Compared with mainstream medical research that tends to focus on finding biological causes and disease cures, patient-led work is more often rooted in what’s immediately relevant to patients’ daily lives, like identifying symptom triggers or relievers. But the approach faces challenges — particularly a lack of funding and other research resources — as scientific institutions aren’t set up to…
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Research updates, April 2
Research updates for the week of April 2 include a new NIH study about Havana Syndrome that parallels the agency’s recent ME paper, a Covid-19 antibody that may cause some Long Covid symptoms, and an upcoming clinical trial.
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Want to enroll in a Long Covid clinical trial? This new project helps track them.
A new Long Covid project makes information about clinical trials more accessible to people who may want to participate in research while showing gaps in the current search for meaningful treatments. Patient-researcher Ezra Spier developed the new project, called Long Covid Studies. As of its launch on March 26, the site includes details of about…
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Research updates, March 26
Research updates for the week of March 26 include a new clinical trial for Long Covid, a drug to protect immunocompromised people from Covid-19, and the intersections between Long Covid and HIV and hypermobility.
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Errors, omissions, potential bias: Why some ME experts are calling for a retraction of the NIH intramural study
After NIH’s intramural ME study was published last month in the journal Nature Communications, some patient-advocates and experts in the ME community say their worst fears about this $8 million, eight-year research project were realized. In interviews with The Sick Times, advocates and experts shared concerns about which patients were included in the research, the…
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Research updates, March 19
Research updates for the week of March 19 include Covid-19’s potential impact on road deaths, a new drug trial, and alcohol sensitivity among people with Long Covid.
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Research updates, March 12
Research updates for the week of March 12 include newly-launched clinical trials from Scripps Research and NIH RECOVER, lingering SARS-CoV-2 fragments in blood and tissue, and healthcare workers with Long Covid.
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