
The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention.

Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living with Long COVID at the Museum of Vancouver.

Illustrators who bravely explore the ongoing pandemic in their work break down stereotypes, contextualize differing experiences, build community, and raise awareness. These artists create spaces where audiences can reflect and engage with stories that can broaden our understanding of ourselves and the world.

Last fall, Brooklyn-based musician Dave Ruder coined a new format when he released a “Long COVID album,” shaped by his experience with the disease.

In her new novel Will There Ever Be Another You, which chronicles her experience of the COVID-19 pandemic, literary icon Patricia Lockwood writes, “‘Please don’t write about it,’ people were already begging each other, so she kept the notebook secret.”

This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her life and died in January 2023 at just 32 years old. Despite a life of immense pain and restriction, Kara…

Derrick Kardos, an Oscar-nominated graphic designer and Long COVID advocate, died on July 18 at the age of 53 due to complications of Long COVID, his family recently announced.

A new exhibition at the Artworks Center for Contemporary Art in Loveland, Colorado, showcases 24 pieces of visual art by 15 artists who live with or are impacted by Long COVID. Within a dynamic gallery space, a diversity of work showcases different aspects of the Long COVID experience under the theme “And Still It Remains.”

Games uniquely incorporate emotional and social factors that influence how we take in information — making them surprisingly useful communication tools in a world in denial about the ongoing threats of COVID-19 and Long COVID. Whether through the cathartic storytelling in indie designers’ interactive theater projects or learning opportunities woven into popular video games, playing…

Two performances on April 24, in New York City and online, demonstrated how arts and theater spaces have become increasingly inaccessible to people with Long COVID, other chronic illnesses, and disabilities over the course of the ongoing pandemic — and how those artists are creating new spaces for themselves.
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