
Two performances on April 24, in New York City and online, demonstrated how arts and theater spaces have become increasingly inaccessible to people with Long COVID, other chronic illnesses, and disabilities over the course of the ongoing pandemic — and how those artists are creating new spaces for themselves.

Breath / is not something / anyone would dare / to hold right now, / even for luck, Ann E. Wallace wrote on the 33rd day of her acute COVID-19 case, during the first wave of the pandemic in spring 2020. Half a decade later, breathing still doesn’t come easy for the Poet Laureate Emeritus…

Last weekend, a lucky group of disabled and chronically ill theatergoers in New York City attended a show that reflected their experiences and access needs. The new, non-narrative rock musical, called “Dan Fishback is Alive, Unwell, and Living in his Apartment,” ran for two sold-out performances at the Public Theater’s Joe’s Pub on Saturday and…

This fall, activist and actor Matt McGorry disclosed on social media that he has Long COVID in an educational, two-part video series. In the videos, shared with over a million followers, McGorry talked about his experience with the disease and summarized key scientific information. He described the project as a “catch-up” for viewers unaware of…

We made a zine! To celebrate our first anniversary, we commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 resources. Please print it and distribute it widely!

“Maybe now vocalists will finally start bringing their own mics,” I tweeted in the first days of March 2020. My virtual audience was mostly friends I met by participating in subcultures in and adjacent to the DIY tendency of hardcore punk rock. In those early days, we on the cultural fringes shared a sense that…

Filmmaker and popular YouTuber Jesse Ridgway, 32, recently shared his year-long experience with Long COVID on social media. Well known as “McJuggerNuggets” on YouTube, Ridgway has accumulated over two billion views on his videos and gathered more than four million subscribers on his channel. He is also an award-winning filmmaker, currently working as an executive…

More than four years into the pandemic, There’s Nothing Wrong with Her is the first novel from a mainstream American publishing company to explore the experience of Long COVID. Hopefully, more will follow to further explore — and educate readers about — the nature of this illness, but for now, Weinberg’s novel stands alone.

Los Angeles: World-renowned musician Sérgio Mendes, 83, died while fighting the effects of Long COVID, according to a recent statement by his family. “For the last several months,” the family wrote, “his health has been challenged by the effects of long term COVID.” Mendes died on September 5, surrounded by his partner, Gracinha Leporace Mendes,…
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance