government policy
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Maryland considers Long COVID innovation bill
Maryland may soon become the first U.S. state to directly support Long COVID research and development. The state’s government is considering a bill that would establish a grant and loan program dedicated to the disease, potentially funding scientists and start-ups based in Maryland.
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HHS hosts event and announces new initiatives for Lyme disease, but advocates are skeptical about follow-through
The Lyme disease roundtable followed a similar event on Long COVID, which still hasn’t led to action on the disease
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect.
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Research updates, December 9
A new study in the International Journal of Infectious Diseases examines how COVID-19 impacts the immune system.
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The future of Medicaid is “really scary” for people with Long COVID
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disadvantaged groups hard. For many with Long COVID, the cuts put their lives and well-being at risk.
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Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
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It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium.
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
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Letter to the editors: Concerns about California’s right-to-mask bill
In May, The Sick Times published an op-ed about a novel bill in Illinois that would enshrine the right to wear medical masks into that state’s law. The op-ed’s author, a writer and advocate who was part of the coalition behind the bill, wrote that advocates in several other states had worked on similar legislation.…
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Kennedy’s HHS commits to Long COVID, but without clear funding
Following two roundtable discussions with leading researchers and government officials — but limited patient engagement — HHS announced a public awareness campaign and medical resource platform
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Left without care: Many Long COVID clinics are closing down in the U.K.
Fewer than half of U.K. Long COVID clinics will stay open this year, according to research from the charity Long COVID Support. At their peak, there were 120 clinics across the U.K., but only 46 have confirmed they will remain open.
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Research updates, February 17
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National COVID-19 trends, February 17
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“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.
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