government policy
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Now offline: Government resources about Long COVID as a disability
Several government resources about accommodations for people with Long COVID have become unavailable in the last week, following purges of government websites and datasets under the Trump administration. These pages offered crucial information about rights under the Americans with Disabilities Act (ADA) for people with Long COVID and their employers.
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Breaking: Vital Long COVID data taken down following Trump order
A key source of U.S. Long COVID data is now offline following a purge of information related to sexual orientation and gender identity ordered by President Donald Trump’s administration. The Household Pulse Survey, a data collection effort by the U.S. Census and Centers for Disease Control and Prevention (CDC), is among many CDC datasets and…
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RECOVER hasn’t been impacted by Trump freezes so far, sources say. But the program’s future is still uncertain.
As scientists across the country face confusion and uncertainty following drastic changes at the National Institutes of Health (NIH) under President Donald Trump, the agency’s flagship Long COVID research program is continuing its existing work as usual. But future studies could be delayed or interrupted and prospects for additional funding are unclear under Trump’s leadership.
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As someone with Long COVID, I’m terrified of what could happen to the Affordable Care Act
Based on my past experiences, I fear that many Americans – including myself – may soon be deprived of the accessible, affordable healthcare we desperately need. Listen to Bobbi Dempsey discuss this essay on our podcast (timestamp: 14:20): It’s not an exaggeration to say that the Affordable Care Act (ACA) saved my life. Nearly 15…
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How America lost control of the bird flu, setting the stage for another pandemic
Nearly a year into the first outbreak of the bird flu among cattle, the virus shows no sign of slowing. The U.S. government failed to eliminate the virus on dairy farms when it was confined to a handful of states, by quickly identifying infected cows and taking measures to keep their infections from spreading. Now…
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“Don’t give up hope”: Long COVID advocates and researchers say crucial work will continue under Trump
As incoming President Donald Trump has announced a growing list of top nominees who’ve denied science and public health, people with Long COVID are preparing for an administration likely to be less friendly for research and advocacy. Along with Trump in power, Republican majorities in the House and Senate may lead to reduced funding for…
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Millions of Americans have Long COVID. Will Kamala Harris acknowledge them?
Advocates say that people with Long COVID, a potentially debilitating chronic disease that can impact all parts of the body, represent a growing voting bloc in this year’s presidential election. Leaders from Long COVID advocacy groups and the broader disability community are considering how to make their case to Harris’ staff, with a particular interest…
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“Perfect storm” of criminalization: Analyzing mask bans
While the conversation around mask bans has focused on new laws and bills, 21 states and many municipalities have laws banning masks and/or disguises in different settings, which is more than other organizations have reported. Even where these bans have apparent limitations or exemptions, the finer language of the laws leaves all COVID-conscious people vulnerable.…
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Sen. Bernie Sanders introduces $10 billion Long Covid Moonshot legislation to support research, healthcare, education
Last week, Sen. Bernie Sanders introduced the Long Covid Research Moonshot Act of 2024. The bill allocates $1 billion in federal funding per year for the next 10 years for Long Covid research, treatments, public health education, and expanded healthcare. A draft version of the Act received thousands of comments from the Long Covid community…
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New NASEM reports offer broad definition, highlight the seriousness of Long Covid
The field of Long Covid research reached a major milestone last week with the release of a new report from the National Academies of Sciences, Engineering, and Medicine (NASEM) outlining a working definition of the disease.
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