government policy
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“Don’t give up hope”: Long COVID advocates and researchers say crucial work will continue under Trump
As incoming President Donald Trump has announced a growing list of top nominees who’ve denied science and public health, people with Long COVID are preparing for an administration likely to be less friendly for research and advocacy. Along with Trump in power, Republican majorities in the House and Senate may lead to reduced funding for…
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Millions of Americans have Long COVID. Will Kamala Harris acknowledge them?
Advocates say that people with Long COVID, a potentially debilitating chronic disease that can impact all parts of the body, represent a growing voting bloc in this year’s presidential election. Leaders from Long COVID advocacy groups and the broader disability community are considering how to make their case to Harris’ staff, with a particular interest…
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“Perfect storm” of criminalization: Analyzing mask bans
While the conversation around mask bans has focused on new laws and bills, 21 states and many municipalities have laws banning masks and/or disguises in different settings, which is more than other organizations have reported. Even where these bans have apparent limitations or exemptions, the finer language of the laws leaves all COVID-conscious people vulnerable.…
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Sen. Bernie Sanders introduces $10 billion Long Covid Moonshot legislation to support research, healthcare, education
Last week, Sen. Bernie Sanders introduced the Long Covid Research Moonshot Act of 2024. The bill allocates $1 billion in federal funding per year for the next 10 years for Long Covid research, treatments, public health education, and expanded healthcare. A draft version of the Act received thousands of comments from the Long Covid community…
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New NASEM reports offer broad definition, highlight the seriousness of Long Covid
The field of Long Covid research reached a major milestone last week with the release of a new report from the National Academies of Sciences, Engineering, and Medicine (NASEM) outlining a working definition of the disease.
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‘They bungled it:’ NIH documents reveal how $1.6 billion Long Covid initiative has failed so far to meet its goals
In February 2021, the National Institutes of Health launched a new $1 billion initiative to study Long Covid, a chronic disease that has changed the lives of millions of Americans. Three years later, the NIH initiative, called RECOVER, has not met these goals, according to a detailed review of budget and planning documents obtained through…
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Sen. Bernie Sanders seeks feedback on $10 billion “moonshot” for Long Covid
Last week, Senator Bernie Sanders proposed a “moonshot” for Long Covid, which would allocate one billion dollars a year for the next 10 years to mandatory research into the disease. The Senator and the United Senate Committee on Health, Education, Labor, and Pensions (HELP) are currently seeking email feedback on a draft of this legislation,…
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Sen. Bernie Sanders introduces resolution to formalize Long Covid Awareness Day
Today Senator Bernie Sanders and the Covid-19 Longhauler Advocacy Project (C19LAP) announced a resolution to formally designate March 15 as Long Covid Awareness Day. “This resolution is a major step in letting the Long Covid community know that we are not being left behind, that we are seen, that Long Covid is real, and that…
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A win for healthcare workers and patients: The CDC returns HICPAC’s draft recommendations on infection control
Last summer, the federal Healthcare Infection Control Practices Advisory Committee (HICPAC) began meeting to update their guidance on infection control in healthcare settings for the first time in sixteen years. The committee’s draft recommendations, released in November, argue that surgical masks are adequate protection against airborne viruses, and allow employers to decide whether to implement…
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Senate hearing highlights Long Covid crisis — but not Covid-19 prevention — while advocacy groups bring their demands to DC
On January 18, the Senate Committee on Health, Education, Labor, & Pensions (HELP) convened a hearing about Long Covid, discussing research priorities and healthcare challenges for the disease. Senators heard from people with Long Covid and scientists studying it in front of a packed room full of Long Covid advocates and allies, along with thousands…
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