government policy

Social media users ask, “Where is Mandy?” as CDC director stays out of spotlight during Covid surge

COVID-19, Policy & Advocacy

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By

Miles W. Griffis

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January 16, 2024

Despite what might be the second biggest surge of the entire pandemic, CDC director Mandy Cohen has been absent from her official CDC social media accounts. Similarly, the CDC has yet to issue any press releases or public service announcements specifically about the JN.1 surge, which may be infecting over one million Americans each day…
Policy experts, scientists, disability groups urge Biden to address the Long Covid crisis

Policy & Advocacy

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By

Miles W. Griffis

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December 18, 2023

A wide breadth of policy experts, scientists, and disability groups are calling on President Biden to urgently address the Long Covid crisis with annual funding in the billions. In the open letter published on Monday, health policy experts, leading Long Covid researchers, clinicians, journalists, chronic illness and health advocacy groups, and many others demand that…
HHS gave million-dollar grants to nine Long Covid clinics; here’s how they plan to use the funding

Health, Policy & Advocacy

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By

Betsy Ladyzhets

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December 12, 2023

This fall, the federal government announced a new grant program to support Long Covid care: the Agency for Healthcare Research and Quality (AHRQ) awarded million-dollar grants to nine Long Covid clinics across the country, designed to help these centers extend their reach and develop best practices for addressing this complex chronic disease. Each clinic can…
Census change would reduce estimates of disability in U.S., impacting community resources and Long Covid research

Policy & Advocacy, Science

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By

Betsy Ladyzhets

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November 21, 2023

The U.S. Bureau of the Census is considering a change to how it tracks disability, which would lead to significant drops in estimates of how many Americans are disabled. The change may result in cuts to funding and resources for disabled communities, experts say, including the millions of Americans with Long Covid.
The HHS invites nominees for a new committee on Long Covid, but will it listen to them?

Policy & Advocacy

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By

Miles W. Griffis

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November 21, 2023

On Thursday, the Department of Health and Human Services (HHS) announced they are seeking nominations for the Secretary’s Advisory Committee on Long Covid, which will incorporate perspectives from the public to inform the executive branch on Long Covid. The HHS will consider up to 20 members from a wide array of expertise from people with Long…