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Even stones break in this heat: Experiencing Long COVID in Indonesia
Now it’s been four years. And this thing — this invisible thing — is still here. Every morning is a gamble. Will I wake up with energy? Or will my legs feel like stone? Will I be able to focus? Or will my thoughts float around like lint in the air, impossible to catch?
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“There is no money to survive”: Long COVID pushes India’s marginalized workers deeper into poverty
While research on Long COVID in India is scarce, studies and people’s experiences suggest that the pandemic has deepened socioeconomic inequalities in the country. Among the hardest hit are marginalized workers, including daily wage laborers and cleaners, whose livelihoods depend on intense physical labor. For them, Long COVID is not just a health and disability…
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False hope: In Sub-Saharan Africa, wars damage Long COVID research and surveillance
In summer 2023, clinical nurse Rino Da Costa was well into recruiting participants for a study to monitor Long COVID cases in Naquitengue, a village in Cabo Delgado, northern Mozambique. It was a promising research endeavor until a flaring of gunfighting sunk her efforts.
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Without clear clinical guidelines in México, people with Long COVID face gaslighting and erasure
The only explanation Jacqueline Ventura can think of is Long COVID, also called COVID persistente in México. But though Ventura accrued a hodgepodge of symptoms for two years after getting reinfected with SARS-CoV-2, doctors never diagnosed her with the disease. Every symptom had an alternate explanation. Like many around the world with Long COVID, the…
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With no approved treatments and little support, people with Long COVID turn to online drug markets
With no approved treatments, lack of support, and stigma against the disease, many people with Long COVID are using overseas pharmacies to source medications. Some of these treatments are widely used for other conditions, such as HIV and hepatitis C, but are not approved for use in Long COVID.
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We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride
How can people with energy-limiting conditions march for our rights if we have negligible physical capability and exertion worsens our symptoms? My colleague Mlindeni Gabela and I are pioneering a new kind of protest in South Africa: SICK Pride. SICK stands for the Society for the Inclusion of Chronic Knowledge, which we feel is a…
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Clinical trials explore how Low-Dose Naltrexone could help people with Long COVID
Observational studies suggest Low-Dose Naltrexone may benefit some people with Long COVID and ME. People with these diseases have shared their experiences with LDN in online communities, reflecting the value of patient knowledge. Now, LDN is attracting growing interest from researchers. Current clinical trials include a Long COVID study in Australia, a Spanish study focused…
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Climate change is worsening symptoms of Long Covid and POTS. Here’s how people are navigating it.
This spring, a record-breaking heat wave swept through Brazil, triggering fires, exacerbating drought, and testing the country’s energy grid. Fernando Santos, 33, who had been living with Long Covid and postural orthostatic tachycardia syndrome (POTS) since June 2021 and had made some progress in his recovery, began to decline when the heat arrived in Rio…
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In South Africa, Long Covid is an afterthought to Tuberculosis
Tuberculosis (TB) and Long Covid are two diseases that have some overlapping symptoms. The two are often mistaken for each other in South Africa. Long Covid is poorly understood and acknowledged in South Africa, and mostly dismissed, say people living with the disease. And it’s worse if you’re Black and poor.
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Olympics volunteers resign over lack of Covid-19 precautions
Earlier this month, a group of Olympic volunteers demanded Covid-19 precautions at the 2024 Paris Olympics, stating they would resign if precautions weren’t implemented. “Covid-19 pandemic threat denial is not an antidote to contamination,” the volunteers wrote in a press release. “If no steps are taken, we will collectively resign from our assignments, and will…
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