
After NIH’s intramural ME study was published last month in the journal Nature Communications, some patient-advocates and experts in the ME community say their worst fears about this $8 million, eight-year research project were realized. In interviews with The Sick Times, advocates and experts shared concerns about which patients were included in the research, the…

Research updates for the week of February 27 include a major study about ME, persistent SARS-CoV-2 infections, and the blood brain barrier’s connection to brain fog.

On Friday, the ME advocacy group #MEAction shared that their co-founder, Beth Mazur, passed away after living with myalgic encephalomyelitis (ME) for 15 years. “She was a selfless beacon of hope and light for so many in our community and she demonstrated an unwavering commitment to the cause,” #MEAction wrote on their website.
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