Patient-Led Research Collaborative

Live blog: Following the Patient-Led Research Fund summer 2025 webinar

Science

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sick times

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July 9, 2025

Members of the Patient-Led Research Collaborative (PLRC) and grantees of their $5 million Patient-Led Research Fund will be presenting updates about their work in a webinar today. The virtual event will feature talks sharing new findings about the underlying biology of infection-associated chronic conditions (IACCs), as well as discussions about how patient engagement leads to…
“A morale boost”: Looking ahead to the 2025 Keystone Symposia Long COVID conference with Hannah Davis

Podcast, Science

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Betsy Ladyzhets

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May 9, 2025

In August, leading Long COVID researchers will gather in Santa Fe, New Mexico for a major conference on Long COVID and other post-acute infection syndromes. The meeting, organized by Long COVID experts and hosted by the nonprofit Keystone Symposia, follows a similar conference in 2023 at which scientists presented novel, exciting studies. Managing editor Betsy…
Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC

Podcast, Science

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Betsy Ladyzhets

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April 7, 2025

Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing editor Betsy Ladyzhets spoke with McCorkell in an exit interview. She reflected on her time collaborating on formative Long COVID studies, advocating for federal funding, developing new…
Q&A: Behind the scenes of the Patient-Generated Hypotheses Journal with Vijay Iyer

Science

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Betsy Ladyzhets

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July 5, 2024

Last week, the Patient-Led Research Collaborative (PLRC), the research organization led by people with Long Covid, published the second issue of its Patient-Generated Hypothesis Journal. This journal publishes scientific manuscripts that aim to advance research into Long Covid and related diseases by sharing novel ideas about potential mechanisms and treatments. Betsy Ladyzhets spoke to Vijay…
How patient-led research could speed up medical innovation

Science

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Betsy Ladyzhets

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April 2, 2024

Compared with mainstream medical research that tends to focus on finding biological causes and disease cures, patient-led work is more often rooted in what’s immediately relevant to patients’ daily lives, like identifying symptom triggers or relievers. But the approach faces challenges — particularly a lack of funding and other research resources — as scientific institutions aren’t set up to…
Want to enroll in a Long Covid clinical trial? This new project helps track them.

Health, Science

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Betsy Ladyzhets

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March 26, 2024

A new Long Covid project makes information about clinical trials more accessible to people who may want to participate in research while showing gaps in the current search for meaningful treatments. Patient-researcher Ezra Spier developed the new project, called Long Covid Studies. As of its launch on March 26, the site includes details of about…
Long Covid surveys from a FDA/NIH initiative ask which drugs help alleviate symptoms

Science

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Betsy Ladyzhets

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February 20, 2024

Last month, a U.S. government initiative launched a pair of surveys to collect information about how people with Long Covid are managing their symptoms. Data from these surveys, one for people with Long Covid and one for their doctors, will inform priorities for clinical trials.