Policy & Advocacy
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The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.
Recent policy changes around COVID-19 vaccines are already sowing chaos and confusion and restricting vaccine access — including for people who should still be eligible to receive them.
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Long COVID is increasing housing insecurity, but support programs fail to help
A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.
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Minnesota’s unique Long COVID program retains funding following advocacy
Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.
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Los Angeles’ $13M COVID-19 relief funds could go to building upgrades, not Long COVID care
Los Angeles advocates worry that millions in unspent federal pandemic assistance will fund infrastructure projects instead of supporting residents with Long COVID or preventing new infections.
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Illinois could become the first state in the country to ban mask bans. Here’s how we created the bill to do it.
Anti-mask laws are discriminatory and dangerous, and so I and other disability advocates across the country are stepping up to counter criminalizing with codifying: our bills would enshrine the right to mask in public spaces in state law.
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Secretary Kennedy promises to support Long COVID treatment research in Senate hearing, says son is “dramatically affected”
Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill Cassidy (R-L.A.), who chairs the HELP Committee, asked about federal health agencies’ commitment to addressing Long COVID in his first question to the Secretary.
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“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction, demonstrators demanded that the federal government fund ME research and preserve vital social support systems like Medicaid and telemedicine.
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Minnesota House budget proposes eliminating state Long COVID program
Cuts could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis.
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“Long COVID Mode”: Seeing the crisis through games
Games uniquely incorporate emotional and social factors that influence how we take in information — making them surprisingly useful communication tools in a world in denial about the ongoing threats of COVID-19 and Long COVID. Whether through the cathartic storytelling in indie designers’ interactive theater projects or learning opportunities woven into popular video games, playing…
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$11 billion CDC funding cuts may decimate Long COVID response in several states
Long COVID research and communications projects in several states may be forced to shut down or curtail their efforts due to recent Trump administration cuts to public health funding. In these cuts, announced in late March, the Centers for Disease Control and Prevention (CDC) abruptly canceled $11 billion in grants for COVID-19 and public health…
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