Policy & Advocacy
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Kennedy’s HHS commits to Long COVID, but without clear funding
Following two roundtable discussions with leading researchers and government officials — but limited patient engagement — HHS announced a public awareness campaign and medical resource platform
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How do you get people to care about COVID-19? Here’s what I’ve learned as an organizer.
As someone with Long COVID, it’s demoralizing to see people in my circles party and engage in COVID-risky behaviors while I sit at home. It would be easy to turn my back on those people and give up on community organizations that minimize COVID-19. But that’s not me, and that’s not what being in community…
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Left without care: Many Long COVID clinics are closing down in the U.K.
Fewer than half of U.K. Long COVID clinics will stay open this year, according to research from the charity Long COVID Support. At their peak, there were 120 clinics across the U.K., but only 46 have confirmed they will remain open.
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The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.
Recent policy changes around COVID-19 vaccines are already sowing chaos and confusion and restricting vaccine access — including for people who should still be eligible to receive them.
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Long COVID is increasing housing insecurity, but support programs fail to help
A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.
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Minnesota’s unique Long COVID program retains funding following advocacy
Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.
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Los Angeles’ $13M COVID-19 relief funds could go to building upgrades, not Long COVID care
Los Angeles advocates worry that millions in unspent federal pandemic assistance will fund infrastructure projects instead of supporting residents with Long COVID or preventing new infections.
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Illinois could become the first state in the country to ban mask bans. Here’s how we created the bill to do it.
Anti-mask laws are discriminatory and dangerous, and so I and other disability advocates across the country are stepping up to counter criminalizing with codifying: our bills would enshrine the right to mask in public spaces in state law.
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Secretary Kennedy promises to support Long COVID treatment research in Senate hearing, says son is “dramatically affected”
Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill Cassidy (R-L.A.), who chairs the HELP Committee, asked about federal health agencies’ commitment to addressing Long COVID in his first question to the Secretary.
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“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support
Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction, demonstrators demanded that the federal government fund ME research and preserve vital social support systems like Medicaid and telemedicine.
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