Policy & Advocacy

Minnesota House budget proposes eliminating state Long COVID program

Policy & Advocacy

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By

Betsy Ladyzhets

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May 7, 2025

Cuts could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis.
“Long COVID Mode”: Seeing the crisis through games

Arts & Culture, Policy & Advocacy

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By

Kate Fishman

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May 6, 2025

Games uniquely incorporate emotional and social factors that influence how we take in information — making them surprisingly useful communication tools in a world in denial about the ongoing threats of COVID-19 and Long COVID. Whether through the cathartic storytelling in indie designers’ interactive theater projects or learning opportunities woven into popular video games, playing…
$11 billion CDC funding cuts may decimate Long COVID response in several states

Health, Policy & Advocacy

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By

Betsy Ladyzhets

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April 15, 2025

Long COVID research and communications projects in several states may be forced to shut down or curtail their efforts due to recent Trump administration cuts to public health funding. In these cuts, announced in late March, the Centers for Disease Control and Prevention (CDC) abruptly canceled $11 billion in grants for COVID-19 and public health…
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases

Commentary, International, Policy & Advocacy

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By

Sam Pearce

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April 4, 2025

Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. Writer’s note: In this essay, I deliberately capitalize different categories of ME in order to give each the weight and dignity they deserve. I also choose to distinguish between the Sick and the Well to highlight our status…
The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign.

Commentary, Policy & Advocacy

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By

sick times

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March 31, 2025

In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is precisely why the #JohnVsJonVsME campaign began.
UPDATE: RECOVER Long COVID pathobiology grants restored

Policy & Advocacy, Science

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By

sick times

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March 28, 2025

Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative.
RECOVER grants for Long COVID pathobiology research are among those cut under new NIH directive

Policy & Advocacy, Science

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By

Betsy Ladyzhets

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March 27, 2025

Some grants for Long COVID pathobiology research in the National Institutes of Health’s RECOVER program are among those rescinded by the federal government this week under a new order to cut all funding for COVID-related research. Up to 45 grants awarded in 2022 and 2023 may have been revoked, as well as more recent grants…
Trump administration set to abolish the Office of Long COVID Research and Practice

Policy & Advocacy

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By

sick times

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March 25, 2025

The Trump administration is set to dismantle the federal government’s Office of Long COVID Research and Practice (OLC) this week as part of a larger restructuring of health agencies, sources have told The Sick Times. This news, also reported by POLITICO and the Substack Inside Medicine, represents another blow among several moves this administration has…
Live blog: International demonstrations ignite for Long COVID Awareness Day

International, Policy & Advocacy

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By

Miles W. Griffis

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March 15, 2025

Demonstrations for International Long COVID Awareness Day have sparked around the globe. Whether raising awareness about the disease in public or from their homes, people with Long COVID and their allies have raised their voices to demand recognition, research, treatments, support, and prevention of COVID-19 during the ongoing pandemic, as many in the community observe…
Our community came together to start International Long COVID Awareness Day in 2023. Here’s how you can get involved this year.

Commentary, Policy & Advocacy

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By

Angela Laffin

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March 14, 2025

March 15, 2025 marks the third annual observance of Long COVID Awareness Day. Efforts organized around the day educate the public on Long COVID, and put pressure on governments, policymakers, public health officials, and healthcare workers to take action on the disease.