advocacy
-
Tinu Abayomi-Paul, writer, disability advocate, and person with Long COVID, dies at 52
Atinuke “Tinu” Abayomi-Paul, a prominent writer and disability advocate, died on September 26 at home in Texas. She was 52. Abayomi-Paul was well known in the Long COVID and disability community for her writing, speaking, and mutual aid organizing. She was the founder of Everywhere Accessible, an advocacy organization which she launched in 2019 to…
-
Millions of Americans have Long COVID. Will Kamala Harris acknowledge them?
Advocates say that people with Long COVID, a potentially debilitating chronic disease that can impact all parts of the body, represent a growing voting bloc in this year’s presidential election. Leaders from Long COVID advocacy groups and the broader disability community are considering how to make their case to Harris’ staff, with a particular interest…
-
Introducing Long COVID Essentials, a new resource series
We are excited to announce Long COVID Essentials, a new collaboration between The Sick Times and Long COVID Justice. Over the next several months, we’ll be publishing over 30 resource sheets that provide foundational information about navigating Long COVID. Each sheet can be printed and/or shared as digital PDFs.
-
A brief, oral history of mask blocs: Part 1
Mask blocs are grassroots mutual aid groups that distribute high-quality masks, such as N95s, for free in response to public health failures during the ongoing COVID-19 pandemic. Many were created and are led by disabled people, many of whom had little or no prior organizing experience. Many include organizers who have Long COVID. Most of…
-
Sen. Bernie Sanders introduces $10 billion Long Covid Moonshot legislation to support research, healthcare, education
Last week, Sen. Bernie Sanders introduced the Long Covid Research Moonshot Act of 2024. The bill allocates $1 billion in federal funding per year for the next 10 years for Long Covid research, treatments, public health education, and expanded healthcare. A draft version of the Act received thousands of comments from the Long Covid community…
-
Black and Unbelieved: A conversation with filmmaker Chimére Sweeney
Coming down with Covid-19 on March 22, 2020 completely altered filmmaker Chimére Sweeney’s life. A Black middle school English teacher in Baltimore, Maryland at the time, Sweeney was shocked to find herself disregarded by doctor after doctor as she pushed to find answers when she was still sick weeks, months, and then years after infection.…
-
‘They bungled it:’ NIH documents reveal how $1.6 billion Long Covid initiative has failed so far to meet its goals
In February 2021, the National Institutes of Health launched a new $1 billion initiative to study Long Covid, a chronic disease that has changed the lives of millions of Americans. Three years later, the NIH initiative, called RECOVER, has not met these goals, according to a detailed review of budget and planning documents obtained through…
-
Long Covid advocates call out Biden, ask for $1.2 billion of 2025 NIH budget
Last week, a delegation organized by the grassroots advocacy group the Long Covid Campaign traveled to Washington D.C., asking Senate leaders to accelerate over a billion dollars in funding for Long Covid research with the Biden administration’s fiscal year 2025 budget for the National Institutes of Health (NIH). The advocates made themselves known in the…
-
#MEAction launches campaign to educate healthcare providers about Myalgic Encephalomyelitis
#MEAction, the nonprofit organization advocating for people with myalgic encephalomyelitis (ME), has launched a campaign to educate healthcare providers about the disease, collaborating with medical schools across the U.S. The education campaign, called “Teach ME, Treat ME,” kicked off last week in time with #MillionsMissing 2024, an outreach event for ME that takes place in…
-
Letters to the editors: Sen. Sanders’ “moonshot” legislation
Today, April 23, is the last day to submit comments to Senator Bernie Sanders’ office and the Senate Health, Education, Labor, and Pensions (HELP) Committee about draft legislation proposing $10 billion in funding for Long Covid research over the next 10 years. Following The Sick Times’ story last week about this proposed bill, we received…
Follow Us
get the latest long covid news
Trending
Recent ARTICLES
Tags
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance